MY VIEWS

Mainly about my ordeal with becoming disabled, but with many of my opinions, experiences, and views. I am disabled by Fibromyalgia, Chrinic Fatigue Syndrome, Psoritric Arthritis, and chronic frequent migraines.

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Tuesday, April 26, 2011

Embraced by the Light by Betty Eadie

If you have not read this book, I suggest that you do. Extremely good.
Note to a friend;

believe in this book I suggest. I can communicate with spirits, have done this all my life. Though I should say they communicate with me, really out of my hands. It is sort of a one way street. Though I have asked and gotten answers in return, like from my Mom.
The book is very real. Some of the stuff she says there is no way she could know unless she had communicated with spirits before. I have seen and read a lot of stuff and she is very real in her experience. So please know that she is telling the truth. I can vouch for her. I have never heard anyone else discuss some of the stuff she says about spirits and there is no way she could no unless it was for real, so trust her. When you read the book it is so helpful about going to the next life. God is real and we will be with him. The hard part is actually the dying process as we have never done it before, though this lady has, it really isn’t to bad if it is peaceful. I think it is if you have of trauma/pain etc..then that is the hard part. But when people are in a lot of pain, right before they die, they don’t feel it anymore. Mom’s spirit left her body hours before she actually died. 5 am,
I was walking the floor and asking,
why are you gone, you should be here with me, hugging her pillow and crying. I was so out of it, like I felt her spirit leaving the earth and the separation. I was not even aware of what I was saying, it was ike my spirit was talking to her spirit through my body, it’s words were coming out, my spirit felt the separation. It was a very , very hard few hours, I was really feeling her leaving.

I didn’t realize that was what was happening until my sister talked to me about it, and then we realized that was her spirit going home. When she actually died it was like I had already experienced her spirit leaving and when I saw her body at the home, it was like the light was gone. Don’t know how else to explain it, but when you read the book it is soooo enlightening. Her spirit left her body about 13 hours before she died, and it is said that a body can’t live long with out its spirit. Our body is just matter, but the spirit makes it alive.
Ok, enough of my sermon, I do hope you read the book Rog, it is very, very, good. I read 3 times and am ready for my forth.
lol
In case you didn't get this from this note, my Mom passed away in early Sept. Been a very rough time.

Monday, March 08, 2010

Again, I saw the light

A few times in my life I have seen the light, this was another one. God know not to show me the full light , it is to hard to come back.


Sometime during the late morning hours I was in my sleep, but this not being a dream as I can tell this from a dream. I have had too much experience in this type of stuff. I being asleep, looked up and saw through the window and top of a dark colored wagon like car, like a station wagon. Then I was through it(through metal and glass just my soul) and ascending into the sky upward, very fast so fast I felt my body arched backwards, but yet felt no body at all. I zoomed through darkness and during this ascent I felt bad aching pain throughout my upper torso. I heard the roaring sound a bit higher than one would think but not real high sounding in tone.( I have heard this before when being fully awake) I saw a flash of the light, so quick as to only show me its existence, and I wanted to get through to it, I wanted to be in the light, to be there for good. Leave my body behind and all my pain and suffering etc.I felt it slip away, and God's decision it was a mistake or it was what was happening to another and I was glimpsing what they were going through, they went onto the light, I returned. At first I felt warm in my upper torso, felt like I was covered in warm blood like my throat had been slit and I was covered. Then I felt very hot and awakened throwing the covers off. And my immediate thought was why I couldn't stay in the light, why I was alive. I thought that maybe I stopped breathing in my sleep and died, but then the car meant it was from someone else's event, like when Rickie died. And why did I feel such upper torso pain, perhaps it was a car accident, and I came in at the point where the car came to rest and the body of this person died. Either way, I laid for awhile thinking about it, and sad I remained here, it being God's will I remain
Just Me.......

Sunday, February 28, 2010

My Senegal Parrot

I just want to add here that Senegals are known for a game they play. I call it scratch and play. They tilt their neck for scratchers and then try to catch your finger. Mine plays it at times, and it is so funny. You have to be on gaurd for this game. Sometimes I can tell when she is going to do it from the look in her eyes, feisty look. other times I can't but I am always aware and try to be faster then her. lol
That being said the other thing is that my Seny is very teritoral of her cage and I am very careful not to put my hand into her cage unless I know it is ok. Treats are ok to come in, lol
but if I reach into her cage to pet her, I know I may get bit. Once she is out that goes away, but she is nippy now due to hormones. Try to have things ready for that beak, balsa wood, and rice cakes with no salt are fun for them to chew on instead of fingers. This time of year she can become almost un-handleable, due to hormones for Spring. If the bird is acting out and you want to keep your finges , let ithem perch for awhile and leave them alone. Mine has a perch on top of her cage and she will sit up there and preen.
My views.......

My Senegal Parrot

Re: Senegal Parrot Biting and Aggression Issues


Hi, one of the reasons that the Senegal bites when it is on the floor is because it feels vulnerable, mine won't even go onto the floor, it scares her to much. Preditors will get them if they are down low, and it is instinct for them to be up high. Widdle likes the highest spot in the room and the highest shoulder to be on.
just Me

My Senegal Parrot

Hi, I have a Seny and it can get very agressive when playing, especially games like catch the finger and so on. She can be very nippy especially now when the hormones are starting up for Spring. It is important to have something in your hand that you can put into her beak, mine loves balsa wood. Other woods are to hard for her. And she loves to chew rice cakes make with no salt. Just a couple ideas. I enjoy playing with her, and I know when I do I will have a couple holes after, but it is fun and gives her this outlet that she enjoys. Playtime can be serious for animals that are preyed on. It is also a teaching time. They learn to defend themselves. If you have ever watched cats play you see what I mean. These are wild animals no matter how you look at it. And they have those instincts still in them. To protect themselves and defend thenselves. A parrot will bite the person it is on if it is trying to get that person to flee, as it feels danger and wants to protect its loved one. If my nephew comes to close, my bird will bite me. We think it is strange behavior, but the bird thinks it is protecting you by telling you to flee the danger, like a beaver tail slap.
love my birdie,
Just Me.......

Sunday, February 21, 2010

Pernacious Anemia Society

Hi, Just wanted to let folks(the few that read this blog) know that this is there, I had no idea. The web site is really good. If you have this anemia, you will enjoy this Society.
Just Me....

Health care reform

Hi, I said it before and I want to say it again. Health care does not need Obama doing anything to it except expanding/encouraging the private sector in helping with those who don't have the money for insurance. There are free clinics all over and they are funded privately or through Gov. grants. If the Gov. gave big companies tax credits/other incentives towards contributions to these clinics and also to contributions to Hospitals who care for those who can't pay. Tim, when he had his motorcycle accident, the person who hit him had no insurance coverage at all, good ole florida for you. His whole bill was covered by the Hospital which was funding through the private sector. His bill for the Helicoptor ride alone was over 30,000.00 dollars. Thirty thousand !!. He was on life suppoert for several days, and the bill was really high, He never had to pay a cent. That is an example of what privately funded medical care is, and does. This needs to be expanded on instead of costing other who have insurance to pay higher premiums for there coverage, and making cute to Medicare etc...STOP Obama !!!
Just Me.......

visit with the surgeon

Well, not much to do. The sinus surgeon didn't have a whole lot to offer in the way of remedies. Got the anti biotic you use in your nose, not orally. It is a real hassle to use it. It is a liquid and have to mix it with some saline and spray it inot the nose. The bulb they gave me doesn't really spray well. it gushes it into my nose. ugh !!
And when it is low you have to turn it up and get the rest out with your head back. not very good. Supposed to do this 2 times a day, 30 cc per side. I am trying to do it, but my head feel full of water. Don't know about using this stuff. Need to get a bottle that sprays a mist up in my nose. In the mean time I am fighting infection, just a constant battle. The irragation thing like a water pick I try and use aften, but it is the same, much drainage after and feels like my brain is full of water. Takes forever to drain all out.
I did get the perscription to get the genetic testing done for Cystic Fibrosis, think I have the recessive gene, or one gene from mom's side of the family. At a reunion there was talk of a couple folks in the family as having it. Mom and a few of her siblings have strong symptoms, as I do also. I thought several years ago I had the symptoms of it, and did some research and feel sure that gene is in me somewhere. There was research saying you could have the one gene and show symptoms. Plus I was born with no forehead sinus's, a hallmark of Cysric Fibrosis. When I get the energy will get that test done. I am very frustrated with my sinus as this will be a constant issue for the rest of my life, made worse by the surgery. The fron of the right side where the stictches are just keeps bleeding after I blow the scab off over and over again, don't think it will wver heal. Been 5 months now.

Asphalt

I fell the other morning walking the dog, I will be so glad when my sister gets him. I am tired of walking him everyday. The yard os covered in snow, so having a fenced in yard does not help whennit is covered in snow. So noe I know why they call it Asphalt.

Mom's big adventure

Watching Mom has been a full tome job.
She was up all night the other night, part of the progression of the illness.I went to the bathroom around 2;30 am and there she was doing stuff with papers etc..I was like, Mom, you need to get to bed..she said, well I just want to get this stuff done. I threw up my hands and went to bed. Next day she was exhausted as I knew she would be, she had some neck pain and gave her her pain med, she went to sleep, and roused a bit in the evening, and laid back down, never really getting out of bed, and she slept through till morning. Which was good, she needed the rest.
Then this morning I was coming out to walk the dog. I don’t get up real early so he has to wait on me….he gets walked before I go to bed. Mom had him on the leash, and I told her, wait one minute Mom, I need to go to the bathroom and then I will walk him. I came out and she was nowhere to be found. I looked outside up and down the street, downstairs, all the rooms, and finally went and looked out the back windows and saw her in the yard of a neighbors house in lying in the snow by a tree. I called to her and she answered, I asked if she was alright and she said she could not get up. So I told her I would be there in a minute. I ran and got my boots on as where she was the snow was about a foot deep. I finally trudged to her, she had the dog , and I tried to get her up. I didn’t have the strength.Bill had come behind me and I went to help him as he had fallen in the snow already, so I went and got him to mom, he was able to get her up after I got her knees on my coat. She was shaking more out of fear then anything. Her knees and feet were numb, and we had a tough time getting her out of that yard, finally got her to the street and then I asked Bill if he could go and get the van. So he did, got her in the van and back to the house. Had to stay in the van as she was trembling and her knees were weak etc..so went ahead and finished walking the dog, and then put the dog inside and came out and Bill and I got her inside, sat her down, and got her some hot tea and food. Whew I am so tired from all that trudging in the snow, and off they went to go eat, lol…

Saturday, February 13, 2010

Hi, just popping in

Hi, I have no idea why I said Hi Mack, I don't even know a Mack. must have been a typo.
I am reading the new Diana Gabaldon book, An Echo In The Bone. She has another hit, it just came out in 2010, and so far my fellow readers are my sister,(who bought it) and 2 neices, a couple friends of my sisters. we are hooked, and knowing we have to wait another 2-3 years for the next one is torture. Diana , start right away, please !!
If you haven't read this series it is pretty good. I am about 2/3 of the way through the book of over 800 pages. I love a thick book. I can spend more time with my favorite characters.
ok, next...
I am really feeling my Psoriatic Arthritis this winter. It is really getting bad, I sure hope that the summer feels better, can't believe it. When my Rheumotologist first diagnosed me with this, I was sceptical to say the least. I figured it was all the Fibro. But I am a true believer now. It is very frustrating I can't take the ibuprofin meds for this, the anti inflamatories. I need to start on the Glucosomine, I just hate how big the pills are, they are all huge. I have a hard tome swallowing pills.
I have read more about the Preniciuos Anemoia also, and I have all the symptoms. I didn't know they had a Society. I just joined that. Amazing. I do the shots every month, but I think I need it more often, like every 2 weeks. What could it hurt, my body will just get rid of what I don't need. My red blood cells are to big from the anemia, thus causing more of the shortness of breath, and the fatigue. It would stand to reason if the red blood cells can't carry oxygen properly, you would be tired and short of beath.
My wonderful sinus surgery has turned out to be a nightmare. I just finished 4 months, yes, 4 months of anti biotics and the infection is back, after only 3-4 days. Unbelievable. I am worse now after the surgery. Where is the friggin gun, damn, this really sucks !!
I have read many message boards on this topic, chronic sinus problems, but I never see anyone with it, except Felix Unger on the Odd Couple, remember the humming, lol
well, I sympathize with anyone who has sinus problems. I got one of these sinus irragations systems, cost 100.00. You know I am desperate now, 100.00 !! it is like a water pic, but gentler. It does work but it takes a few hours for it to clear them and in that time there is a lot of drainage. ugh !!
I see the surgeon next Wed. but I am not sure she can do anything more. I first thought I would never go through that surgery again, it was pretty rough. Thank God for pain meds. But now, if it would help this situation, I guess I would do it again. I can't imagine it would be as bad. She already broke the bone and reset it in 3 places, did the stitches, scaped everything out-bad tissue. I still have bleeding from it. So I can't imagine there is much left except this one thing. I had the cat scan done and it showed Acute sinisitis, or how ever you spell that. So, what do I do now ????
I am still dealing with the Fibro, CFS,and so on.
I live with my mom and her gentleman friend, and she is losing her memory, it is pretty bad now, and he had major surgery a few months ago. He had to go to the ER like every week. I did not think I was going to survive that time. I was so exhausted, trying to keep up with everything.
At times I think my old life could not exit, being how I am now. All the dancing,almost every night, for hours on end, with out breaks. Ice skating, walking 12 miles a week. Who was this person. How could my life change so much. And I hate what I am now- so much. I want my life back , and I want my time back. Not going to happen I know, but I can still say it.
I am watching my sister's dog, she went to Vietnam for 2 weeks. And in this 2 weeks we get more snow than I have seen here in the 6-7 years I have lived here. I am telling her no more winter dog watching. She retires in a few months. I imagine she will be out here more often, but I know she wants to travel too. I loved to travel, but I can't now. I feel like I am letting her down as she wants me to go with her. I would only be a problem to her, to many health issues.
My Parrot is sceaaming for her dinner so I will close now, try to be back more often, for my own mind, as I know hardly anyone reads this. That is ok, it is an outlet for me, see ya,
my views,just me.....

Thursday, October 01, 2009

Hi Mack

I have never known anyone to have this procedure done. I am grateful that I had a very good surgeon, the surgery would have been bad no matter who did it, just glad it was done right the first time and won't have to go through it again, I hope anyway. Try searching the Yahoo groups, they have groups on just about everything.I am still getting crud out, she said it would take about 6 weeks to fully heal and I believe her, I am back on anti biotics starting today, but I think it is because I got so run down from taking care of mom and her gentleman friend, Bill. He went through the surgery very well, and will be able to come home from Morgantown in a couple weeks.Mom had her last IV putpstient treatment today, so that is done, I am wore out. Morgantown is about 3 hours from where we live. Anyway, back to the sinus thing. I had a hard time finding a good Doctor who would do it for me, this woman is so nice, she is in Winchester Va., Catherine Smith if anyone needs a good one in that area. Thanks for your comment Mack, always a pleasure to get comments back. At least I know I exist out there just a wee bit, lol...Just Me....

Wednesday, September 30, 2009

Sinus surgery

Boy, this was a rough surgery. I wouldn't have done it had I known. She scraped out all the old tissue that had repeated infections, and was chronically inflamed. She used stitches to go in and break and resew the middle bone back straight now. She opened up the right side as it had very poor drainage. this was on Sept 8 th and she also packed it to control bleeding. When that stuff came out I thought I had aliens coming out of my nose, it came out in the back of my throat 5-6 times snorting back, and as of today I am still getting big scabs and stuff out, whew, what a surgery. It feels more open, but I have a bit of infection there, that I hope will take care of itself. I was on anties for a few days after. went to her for a follow up , and she sprayed novacaine up my nostrils and used a tiny vacuum to vac out some of the packing material, but still a lot coming out after that. it has slowed down a lot but still feel like some up in there yet. As of this morning still getting scabs and such out... Whew...but then all this other stuff going on, man oh man...life is something I tell ya....
Just me................
I am 3 weeks into my recovery and much has happened, do you think I could have a nice quiet recovery here, HA !!
Last Tuesday I tucked Mom and Bill in to an ambulance and took them both to the ER. Mom has been fighting Pneumonia for 3-4 months, and enough is enough, Bill was sick , not able to eat and throwing up. He has had 3 major gut surgeries. Being in the ER from noon till 9:30 at night, running back and forth between them with the Doctors etc..They got Mom started on IV anti biotics, so she was stable and they decided to keep her for a few days. So back to Bill, went with him to do the cat scan, he had drank 2 big glasses of dye, which didn’t go out of his stomach at all. He had so much pressure in his gut, he was in bad shape. They found a blockage in the small intestine, He got a tube down his nose to pump his stomach, and I , for 2 and ½ hours putting cold clothes on his head, neck etc..he was still throwing up, but slowly the pressure eased after 500 ml had been pumped out, and he finally got his room. They were both on the same floor, Mom was 203, and he was 211. Kind of funny.
I get home and had to take care of my bird and didn’t get to bed till like 11, had to send out emails to family and talk to my sister and all..
Next day I finally got up there about 2, but on the way I got a speeding ticket, was going 36 in a 25 mile per hour zone. I was so upset. All the stress. He came back to give me the ticket and I was crying so hard I could not even talk to him, he started saying, I have to keep the roads safe, and trying to justify the ticket, and I felt like saying _- - - - - off !!!, I just folding it into my purse, and he asked me my phone number and I had to write it down as I couldn’t say it…God, I was like, oh crap I am going to look so awful at the Hospital, lol
I walked Mom over to see Bill, and I only stayed about 3 hours and then came home. I was so tired was feeling really nauseated and my head hurt so bad. My Brother Tim came and stayed with them the next day, and my sister and her son the next one. My sister went out to the other Hospital they transported Bill to in Morgan Town WV, it is a more specialized Hospital. They gave him IV nutrients as he hadn’t eaten in a week. Then did his surgery Monday at noon, it took about 5 hours, but he is all cleaned out, and he did very well, he is off the respiratory and in his own room now. Mom finished her IV treatments today too.


Jeanette

From: roger morgan [mailto:roger@morgan5010.freeserve.co.uk]

Saturday, September 05, 2009

another good author

Janet Evanovich writes very good and amusing novels, I love her books.

Books to read

If you are looking for some good books to read I have a few suggestions:
The Emerald House by Peg Kerr, and she has another one called The Wild Swans, both very good reads.
The ones that are advertised on this page are all good reads.
As I come across ones I read and like I will let you all know. Reading a good book to me is like a vacation as when I am reading my mind is free from all else, except pain of course.

Monday, August 24, 2009

No cost of living increase for Social Security this year

If that is what they are doing, then I think that the Congress and Senate should not get one either. They are the ones, and the President, who filled the Social Security account with a bunch of IOU's. Maybe they need to pay that account back !!!
Just me...

Sunday, August 09, 2009

Flu

We are just starting to get over a very nasty flu, who else has been sick. I am trying to figure if this is for 2009, or for 2010. it is so late to get a flu , it is time for the next flu shot, Mmmmmm...
Just me....

Thursday, July 23, 2009

Health Care

I think the best plan for health care is to have privately funded hospitals and clincs that are for those who have no income/money/can't afford insurance. The large companies could fund it and receive tax credits depending on the amount they contribute. Government health care will ruin the health care in this country, making the Gov. health care cheap and the other insurance companies unable to compete. You won't have a choice but to accept Gov. insurance, and it will be horrible, let me tell ya. You have to realize it will be bad, bad, bad. there are not enough Family Doctors or specialist now to go around, and this will encourage more students to become Doctors, Govenrment health care will stop many from becoming Doctors, it will be really bad. STOP GOV HEALTH CARE !!!!
Please do not support Gov health care. Anyone who can't addord health care in this country can go to Hospital today and receive care EVEN if they can't afford it. Doctors in Hospitals CAN NOT refuse you care. . of this Gov. health care goes through that may not be true. There are clinics/Hospitals today operating on grants/private funding and they do good, why not just enlarge that system. It will be better then Gov Health care, and the Gov.can offer them grants etc...they don't have to run it. They can also extend the Cobra coverage to folks who loose their jobs, making them be able to get it for 3 years, and longer if they become disabled from their jobs.There are so many other solutions other then Gov. Insurance. it is not the answer !!!
Just me and my views.....

Tuesday, July 14, 2009

Elavil:
I was offered the Elavil(sp) many times by Doctors saying it helped with pain, I don't know if it would have helped or not, all I knew is that it was one of the older anti depressants that had more side effects than the newer ones, so I never would take it. But I am on other stuff that may be just as bad. Just Me....

Friday, June 26, 2009

Oh Michael, !!!

I am very sad to hear this news. The man had much more to give us in music. He was very talented, and still very young. Who knows what more he would have produced. Very, very sad. Yes, he had his faults and they were all made public, but don't we all. Bye Michael, Bless you.
Just Me...

Oh Michael, !!!

Oh Michael, !!!

Oh Michael, !!!

Oh Michael, !!!

Oh Michael, !!!

Oh Michael, !!!

Thursday, June 18, 2009

Sinus surgery, Yahoo

I went to a new ENT and finally got it scheduled, I need it so bad. Took me 3 appt to see her as things kapt coming up, Aug.10th is may surgery date.
The ENT was very good, she looked at my scans then came in to the room. I asked her did you notice anything, and she said, oh yeah.(no forehead sinus's) I told her about the Cystic Fibrosis in the family, she mostly just listened, and was like oh ok, but no sign of investigating it. I have some of those symptoms of CF. She was fine with me wanting the surgery. And she said the one side is like smashed over on the right, which is the bad side. She will straighten out the middle bone that is crooked and then open up the right side sinus so it will drain better. So there are 2 different things she will do. She said she shouldn't have to break the bone, and she doesn't expect a lot of bleeding but there could be. I was so excited, I was like, oh my God, thanks you so much, after what I went through with that other ENT, he was a dork, really cruel when you think about it. Told me he would do the surgery on Thanksgiving, and I was like, if you are willing so am I, that came and went, then he said X-mas, and again I thought sure no problem for me, maybe his family will be away, well once that came and went I realized he was making an ass out of me, and I believe it was cause I was on Medicaid which pays them very little, I guess he thought I was crazy expecting him to do a surgery when he would get paid crap, but at the time I didn't know Medicaid paid so poorly. If he would have said something I would have made some payments to him, I just needed it done, He sent me for a swallow test, and wanted to do allergy testing, and I thought, good grief, I know I have allergies, no mystery there, I did the swallow test and it was fine, I didn't do the allergy testing, by then I realized he was a jerk,so after all that I just didn't go back, the other one out here I called and he wouldn't return my calls, so I am sure he got word I only had Medicaid.
Dr Morin is the name of the one I saw, and it should be Dr Moron !!!!
Just Me.....

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Wednesday, June 17, 2009

MY NEW BOOK IS DONE

Hi, Just finished my book and it will be copyrighted as of Today. Yahoo !!!
Look for it on readers list, or order direct from me. It is 39.99 and it has a lot of good info in it. Great for anyone renting or going to rent. I am pretty excited,
The Title is: How to Be a Successful Landlord and / or Tenant.


Just Me....

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Friday, June 12, 2009

Doggie

Our recent doggie--this was from March-06
she has since gone to heaven from bladder cancer.

Had to help take the doggie to the Vet today, She is 11 and it's time for the Glucosamine. We can give her the same as what humans take in case anyone wants to know. I thought it may have to come from the vet, but it doesn't. She will get 500mg 2 times a day and she weighs about 45 pounds.
She has Rymadil(spelling) to take until the other takes effect. Poor poocher, she has been in much pain lately.

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Colonoscopy results

What a subject, The Doctor told me to not be shy, just fart it out, I was in so much pain, but he got a laugh from me. I also have Divertiulosis, which many people get as they age, no biggy unless it goes into the Diverticulitis, which is an infection. Aren't you glad I shared this info with you.
Just Me.......

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Wednesday, June 10, 2009

Colonoscopy fun

That day:
This was about 3 years ago:

Thursday was prep day. I can not believe that in this day and age they can not come up with a friendly prep for having a colonoscopy. That is the most digesting stuff I have ever had to take. It takes like oily, salty, alka selzer. The first dose, I got down barley, and felt kinda sick etc..and did my thing for while. OK, time for dose 2, Oh my God, it took every fiber of my being not to throw that crap up. I stayed very sick for 2 hours, and at that point I know there would be no number 3, HA!!
I talked to a lady in a doctors office who had just happened to be calling me, and she said, you don't need that 3rd one and I said good, cause I can't do it anyway. Pure hell, what year is this??? We are curing cancers and all this great stuff, but do you think they could perhaps make an easier way to clear out the colon, Good Grief....
Anyway, Had it done today, went well, had some bad pain after, got some pain med, and now just some cramping here and there. It was one hell of a 2 days....
Just Me.....

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Animals

I have loved animals all my life. We always had dogs, cats, birds when I was growing up. When I left home I had 16 aquariums. I also in my childhood had a blind goose, a raccoon,a squirrel,parakeets, love birds, Quaker parrots,ducks that had 11 babies, 2 peacocks,cats,and we had 2 horses,a goat, ..that's all I can remember. Once I moved out on my own I continued with the fish, had another goose, rabbit,parakeets again,dogs,cats,and now my parrot. And I never pass up a stray...lol...
Just Me

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Sunday, June 07, 2009

NAME CHANGE

Hi, since I seem to talk about other topics besides Fibromyalgia I have changed my title of my blog to My Views. I think it describes it better.
Just Me.....

NAME CHANGE,

Friday, May 01, 2009

ebay links for balsa wood lots

http://cgi.ebay.com/ws/eBayISAPI.dll?ViewItem&item=360150568731&ssPageName=A
DME:L:LCA:US:1123

http://cgi.ebay.com/ws/eBayISAPI.dll?ViewItem&item=360150568693&ssPageName=A
DME:L:LCA:US:1123

http://cgi.ebay.com/ws/eBayISAPI.dll?ViewItem&item=360150567930&ssPageName=A
DME:L:LCA:US:1123

Thanks, Just Me.......

Saturday, April 25, 2009

Ebay listings

Hi, I have 3 listings for balsa wood on ebay if interested. Great for bird toys,cerving,crafts, etc...Thanks.
Just Me......

New advertising

Hi, I have added some advertising links to Amazon as I use them a lot and I have books listed on their site for sale. Many of the links are to items I have bought and use, and am happy with. The books advertised are books I have read and are worth reading. I am working on finding a link that will take you right to the books I have listed, Thanks, Just Me.....

Friday, April 24, 2009

Chat in a nice small group

Hi, I belong to a very small group for chatting online, here is the address:
http://uk.groups.yahoo.com/group/helpyourselfcfs-me/
There are only 3 of us active and we get to know each other that way, the other are 2 men from the UK, both very nice. Come on over and visit us there.
Just me....

Credit Cards

I have to tell you I am so glad that the gov/Obama is going to do something about these credit card companies. They have incredible interst rates, they change the due dates to try and trip you up, and the least little thing and they report to your credit report. I had a card and it was for my sister to pay off an amount run up by her daughter. She was paying the monthly fee, and doing the right thing. The company changed the due date on her, and she failed to make the payment in time.So instead of having an interst free rate, it went up to something like 24%, and they did this on purose. I know I am not the only one who was stung by them. How many companies do that, none, you have a due date the same every month. Jerks. They are doing this to so many people, and gave credit to those who should not have had it, then punish them for it. I really hope they make them have rules backed by the government, as they aren't able to rule themselves properly.And I sure hope we don't bail them out, let them fail and learn from their mistakes, this is what capitalism is about. What good is it if we bal all these companies out.It will never end.
Just Me.
Hi all, I haven't been here in awhile, a lot has happened, mostly I am still fighting all my symptoms, the worst I would say are the migraine, almost daily now. Very frustrating for me.I do have a very good Rheumy who does what he can for me, but I haven't been able to find anything that stops the migraines, gave up chocolate too !!
UGH, I drank hot Chocolate every morning and boy do I miss it. I am going to try and be on here more as there is a lot going on in the research field of Fibromyalgia and Chronic Fatugue Syndrome as well. I have many book reviews to give also for you readers. I have just finished the Thomas Covenant series, and the next book comes out in 2010, I hate to wait for it, but I must !!!
It is a very good series and really holds your interst.
Talk to you all soon,
Just Me....

Saturday, May 17, 2008

Thanks for all the comments from everyone,

I really appreciate that you all are reading my views....I take the klonopin at night to help me sleep. my doc has uped it to 1 mg a couple times a night,plus the ambien, and the promethazine(for nuasea) but helps with sleep. I recently did a sleep study, what a horrible night, they hook up so many electodes and wires to you , you feel like a robot. Went to bed at 10, at 2:30 I asked if they wanted me to take more sleep meds, they said no, they were getting a little bit. It was supposed to be a split study, 1/2 the night normal, the secod half with the machine(apnea machine), but I never got to use the machine as I didn't sleep enough. At 4:30 a,. I was gotten up, un snapped, glued etc, and sent home, Told my Doc would get the results, I felt I slept a little, but not much, I was very uncomfortable with all that stuff on me, and they said that my Doc may want me to come back to use the machine, and I said NO WAY, lol
My Neurologist wanted me to take Lyrica, well, it is basically the same as Topomax, and Neurotin, and cause the FDA said it was ok for Fibromyalgia the Docotrs are throwing it at patiens left and right. The Topomax, I could not tolerate, and I do not plan on taking this Lyrica, cause it is in the same family, just a new patent and more money for the drug conmpanies.
The shots he gave me in my neck of Lidocaine have helped that some and I wear a lidocaine patch on my neck every night, Now if anyone has tried this, you know the patch won't stay on by itself, so I wrap an elastic bandage around my neck and pin it shut, just tight enough to hold the patch in place, do not make it to tight, so that has also helped my neck. The migraines are still there, nothing new with them, same as before.And the fatigue is still there,
I made the mistake of during all this other stuff going on and taking care of Mom who has Lymphoma, and had pneuomnia and was in Hosp for 5 days recently, anyway, I let my inspection go on my car, and got the dreaded ticket the other night, and still I had my Virginia'a driver's lic, not west va., yet, so he gave me a good whopper of a ticket, that really hurt my purse strings, cause I am on a very tight budget anyway, lol But I was guilty, so what can I say, trying to get all that taking care of in the next week,
well, tired so have to log off, thanks for all the info posted here by my new frieds who come to vist, I really appreciate it. takecare
Wildblue

Thursday, May 08, 2008

had my say

OK, I have had my say on this matter, I will try not to say anymore, but just to ask folks to look away from his eyes and think, on to better things,
I finally got my Social Security after over a 3 year battle, I have an associates degree , and think of my self as being a free thinking, intelligent individual. I am not a nut case, LOL
I am still disabled, but I still have a brain to think with thank God....I do not post these things with the intent to offend anyone, just to make you think, Thanks for reading, and I will post more later on my own situation which was why I started this blog, later
Wild blue.

Thursday, December 13, 2007

Approved

After almost 3 1/2 years and great deal of help from Senator Byrd, and Congresswoman Capito, I have finally gotten approved for disability through Social Security. I still am in shock, though I don't expect to get very much a month, I feel valadated to say the least. I used Allsup as my lawyer group, and even though they did a good job, I feel like I did most of the work to get to see a different Law Judge , and I made the contact with the Senator and Congresswoman out of desperation, that due to the inquiries from the Good Senator, and Congresswoman, the previous Judge got reprimanded for making a wrong decision, Was he really, I will never know, just what I was told. I went before a new judge, very unusual, usually at the appeals council, they send you back to the same judge who denied you. Anyway, I was approved by this judge, and am very Happy. My Mom now has Lymphoma, non-hodgkins, and I am trying to help her as much as I can, it never ends....LOl
hope to write here more often, been so depressed over my situation. Be back soon
Wildblue01

Amazon Parrots

Hi, thanks for the comment, if it hadn't been for my little Senegal parrot, whom looks like a miniture Amazon, I don't think I would have made it through all this.
Thanks so very much for your kind words, and I am glad to hear from another happy bird owners. kind regards
wildblue01

Monday, January 29, 2007

Update

Hi, I am on my last appeal for Social Security. Been waiting months to get an answer. I have asked Senator Byrd, and Congresswoman Caputo to monitor it. They have made requests to the SS department, but still no word. I doubt I will get an approval. I live with my Mom and her gentleman friend, both 80 years old. I do my best to help them out, but my energy is so low. I am in Physical therapy because a doghouse in wal mart fell on top of me, and I won't get nothing for that, just more pain and suffering. Why it fell on me and not some body else, I have enough pain as it is. And then trying to get pain med from the Doctors was rediculous. They are so afraid everyone who comes in their office is an addict. Unbelievable. And Medicaid now wants one Doctor to wrote all your pain medications, so one Doc can be treating you for Migraines, and another for arthritis, but they want one to write all the pain med, even though they aren't treatring you for that illness. Very stupid policy, you think the Doctors are gonns love this one,and I have asked Congresswoman Caputo to help me with it. I was denied pain med from my Arthritis Doc, cause my primary care had written one for my Fibro. What a bunch of crap. Oh this world is such a pain, so much red tape, and I haven't the energy to deal with it.
Oh me,
Just Me

Monday, November 27, 2006

update

Hi, been a long time since I was on this blog, I stay sick so much and never feel like getting on and adding anything.My SS appeal was denied by the law Judge, and now I am on my last appeal. I have enlisted the help of my Congresswoman and senator, but will that help?, no idea. I doubt it. I was told it will go back to the same Law Judge and he will deny it again, then I have to start all over again and that will be another 2+ years, and then I will run out of time, and that will be that. I can only apply till 2009 I believe. This is so crazy. I hear they want to give welfare to the illigal imagrints(sp), and they won't help the people who live here. This country is a trip. Then I read an article in Readers Digest about how people are abusing the disability insurance and getting it when they aren't disabled, and I am thinking how in the heck did they get it in the first place, when it is the hardest thing I have ever tried to get. They must know the judge, and in that case it is the judge they need to get rid of. I have Docotrs letters, and so on and I can't get it. crazy stuff. I think the article is hurting the people who need it, makes it sound like they are just throwing it out to everyone, and the fact is folks are killing themselves cause they can't get it. What a mess. well, I am feeling not to good so I am going to go, try to write more sooner.....bye bye
just me...

Wednesday, July 12, 2006

Hearing update

Hi, sorry I am not updating more often, so tired all the time. I had my SS hearing on June 6 th, and am still waiting for an answer. I pray I will be approved. I have waited over 2 years for this hearing. I was so nervous, I wish I had done netter, but it is over, and I did waht I did.
If I get the SS disability benifits, my insurance will change to medicare, and I assume I will lose my foodstamps. Just don't know.
A few months ago I went to a new Rheumy and was diagnosed through blood tests with Psoriatic Arthritis also. My C-Reactive Protein level was 32, should have been below 3.2, and I showed a high level of inflammation. I was started on Methotrexte, but broke out from that, so had to stop. Had a colonoscopy done and have Diverticulosis(mild), and internal Hemroids(oh great), lol...I just eat lots of fiber !!
The Fibro also gives me trouble swallowing at times. Food gets stuck in my chest area, and is hard to get down. I will be having an Endascope(sp) done soon to make sure it is nothing more going on there. But think it is like IBS, but in the esophagus area. My Rheumy prescribed some other pain killers also, help some on bad flares, still on the Ultram.
Had my Momo done and it was thought to be close together lymph nodes, I redo this in a few days, follow up check. Hope that comes out ok.
I will try to update more later, see ya,
Just Me....

Thursday, February 02, 2006

Finally, The Tim story...........

Tim was my next to last boyfriend, the only one I had ever lived with, and I have dated quite a few in my healthy days. He was in a motorcycle accident while living with me; he suffered a brain injury, and was flown to Hospital. His Helmet came off and his head hit the pavement, after he bounced off a Van. The pick up truck behind him failed to stop at a red light and rear-ended him. I rushed to the Hospital, and he was having seizures, it was horrible. I held his hand and they had to keep giving him a drug that would paralysis him to try to stop any further injury. I had to put my head down, cause I felt so sick, and lightheaded from the ordeal. Finally they were ready to take him to a room, they had him on a temp respirator, hand pump type, and I was thinking please don't mess up with that. I had to wait till they got him stabilized in his room. He was on life support, stomach being pumped, etc..After forever it seemed I was allowed in. I sat holding his hand, trying to talk with him, I was so upset it was hard to talk, but when i touched him his heart rate went up, so there was some response. You know it is hard to see someone you care about with all the tubes, and the respirator etc....Well, Tim wasn't divorced yet, and his wife saw dollar signs from the accident, so she blocked my visits. I was so angry, and felt too helpless. Didn't know what to do with myself. Tim always beeped me with all 7's on my beeper, and out of his fog a few days later he beeped me. I couldn't believe it. I called and he had recovered to the point where he was able to talk on the phone, however he still thought he was at work. I tried gently to get his brain to accept that he had been in the accident. He was asking where his pants were, and he needed to get back to work. It was really sad. I had him look around where he was. I told him about the accident, and had him look at the nurse, all the tubes etc..And finally he realized what happened, had to be a real shocker. I was still blocked from seeing him, and I couldn't see him until he was well enough to say he wanted to see me. I didn't know if he would even remember me. He had a Subdural Hematoma, which is basically bleeding and swelling in the brain. It is a slow process to get it under control, he bleed from his ears, and to discover the amount of brain injury. Some of his actions were just that actions, non-thought actions. It took several days for Tim to get to the point where he was able to talk normally to the Doctors, and he had endured visits from his wife in misery. He was finally able to ask them to let me see him, at least he remembered me, and he asked that his wife not be permitted in anymore. I couldn’t get there fast enough. Some of his family had come from Minn. to see him. His mom and brother were very nice, and were on my side as far as being able to visit with him as they knew his wife, and how she had treated him. It hadn’t been a good marriage. I couldn’t get there fast enough. When I walked in to his room, he just stared at me. No expression on his face. I thought that was odd, and at the time it hurt me feeling somewhat. I expected a happy greeting. I was to find out later, that he was happy, but his affect (expressions) had been affected, and many times his face showed a lack of expression, part of the damage. I was able to meet and talk with the Doctor along with his Mom and brother. The Doctor outlined his Rehab program, and asked if we noticed any changes with him. At the time I really couldn’t put my finger on what the change I saw was. I took me a few visits to realize that Tim acted much like a child in many ways, and the Doctor confirmed my observations. I went to several of his Rehab sessions as was requested me. It was important that I be there as I would be caring for him upon his release. Tim also had the sex drive of a teen, and he had me in his Hospital bed and snuggled etc... But I was told to expect this. When I had to leave he bagged me as a child would not to leave, but the visiting hours were over and I had to go. I tried to be kind and remember his state of mind. I was told there was no way to know how far the brain would heal and what the final result would be on his personality. His Mom asked me if I were going to be there for him, as otherwise they would have to make other arrangements. I assured them I would be. I went almost every day to see him and it was an hour and a half drive. This was down in Florida. On my way home one night, it was getting to be about 10 pm, my tire blew out. I couldn’t believe I made it to the side of the road as I had been going 60 mph. I was thinking, ok, now what do I do? I went to a house, knocked and the owners were very nice, but did not speak English. I had to use motions to make them understand car trouble, can I use your phone. They were very kind and let me in to use it. I called Triple A, whom I had a membership with at the time. Thank goodness, cause otherwise I don’t know whom I would have called. They were able to put on a spare that got me home, and the next day I had to take it to a shop and have it fixed. Whew! At the time I had been going to school and working at night, so life was pretty hectic, and stressful. After a few weeks Tim was able to walk with me outside and sit on the picnic table, and walk around. It was encouraged to get him back in shape after being in bed so long. He was a weight lifter (not professional), and you could see the loss of muscle in his arms. It was strange cause every week I could see improvement in his maturity; he was growing up so to speak in front of my eyes. We were encouraged to play games where he had to add, so we played a dice game that he loved and had taught to me called Fargo. He did very well with adding, and keeping score. Eventually after much Rehab he was allowed to come home. He had homework to do, like school work to make his brain work, and I helped him get through all that when he had problems. I wasn’t to leave him alone at anytime, so I had dropped my classes for the time being to be home during the day. My night job was my own little business as a bathroom valet in a upscale night club, and I had no one to cover me. So Tim was home at night but he was in bed, and he beeped me every night to let me know all was fine. There was a phone in the bathroom also, so he called and if it wasn’t busy we could talk. He wasn’t allowed to drive at all, and I was told that if he got into a car and tried to drive to call the police. I didn’t think that would be a problem, but at a point in his maturing process he became rebellious as a teen and said he was going to drive. I had a hard time convincing him not to, but he finally relented. I believe it was the trust he had in me that got through. He also had to abstain from drinking etc for a year. The healing process would do the most in the first year, and for up to 3 years after is what the Doctor told me. So I made sure he didn’t drink. I made sure he ate really well, and we went for walks a lot. His brain chemistry was out of whack and he couldn’t sleep, was very hyper, and unable to relax. The Doctor prescribed Ambien for sleep, and I spent one night on the phone with the Doctor till early morning trying to get him to sleep. He would gradually increase his dosage, and he ended up taking 3-4 of the Ambien, a pretty large dose. I would tell the Doctor, he is still walking and talking. After that first night he had to only take a regular dose of one Ambien and it seemed to work then. He was tired and under much stress. It took a lot out of him going back to work, trying to relate to his job and friends etc.. I think he had a difficult time with being friends with the guys under him as he was a supervisor. The people at work were very tolerant as I had spoken to his boss and explained about the brain injury etc..
As time went by I noticed a lack of the ability to rationalize situations, and to control his anger less than he had before. He seemed to be un-trustful of many people. His behavior/personality had def changed to where I could notice it. At the Doctors permission we started driving, and he was able to go back to work. He worked for the county had had a great boss. His friends at work told me as time went on that he had anger problems at work, didn’t treat them as nice, and his friendships eventually shifted from old friends to new ones. It was very hard for one of his friends, he had a hard time accepting Tim’s changes, and I could totally relate. It was hard. One of the first places he wanted to go was to see the motorcycle. Needless to say it was a mess and was totaled by the insurance company. The driver that hit him had no insurance and the Hospital that treated him did so for free. The bill for the Helicopter ride alone was in the thousands due to life support and so on. He was lucky to be able to get the treatment he needed, and from such an expensive injury. Some of the others on his ward were not fortunate enough to survive as well as he did. Their brain injuries were more severe, and some in a coma, very sad.
Tim continued to improve and eventually got to a stopping point where I felt he would not go much farther. Overall he did very well, and was very lucky. He was alive and back to being healthy. Eventually he stopped the sleep medication, and regained much of his strength. Unfortunately he started to care for a young girl at work. Weather it was due to his maturity going down or otherwise I will never know. He went to visit his family, and while he was there he hardly ever called, and when he did he seemed very distant. It was hard for him to pretend due to his injury. He acted the way he felt basically. So I was aware of the warning signs. Been there, done that. Guys have a way of acting towards the old girl as opposed to the new. The old gets criticized, they become distant, they don’t do things for you anymore and so on. It probably goes with women to but since I only know the female view that is what I was seeing. Of course I had hopped it was due to the injury, and not another girl. His beeper (actually mine, as I had loaned it to him) went off one night late, and I called to find out it was a message from the girl asking if he needed a ride from the airport. He was due home that evening, and I took all of his belongings and packed them into his pick up truck. The larger items in the yard he could get later. I left him a note, and I left the house so I would not be there when he arrived. It was best at the time. It was so hard to do, caused I really loved him, but I learned from experience He wasn’t going to change, and this was his choice. I waited in a Denny’s, open all night, till 3 AM, and then went home. I cried so hard, nut I knew it was my pain and I had to go through it. It was over, and that was that. Also learned from experience, don’t try to keep hanging on, and so on, end it and get it over with when you know that is it. By this time I had bought a Consignment store business, worked at night, and continued my classes to get my Associates degree. Getting through my days was hard, but I stayed really busy. Tim had called me that next night and I told him the pain was to much and I just could not talk to him. I talked to him again a week or so later and he wanted to keep seeing each other, and I asked him if he loved me, and he said no. So I said what is the point. He ended up moving in with the girl, and I soon saw on my phone bill where he had been calling her the last month or so, several times actually. I called her to talk to her, I can’t remember the whole conversation, Tim was there also, and I told he that Tim had told me that she wasn’t that great in bed. And she immediately attacked Tim, how could you say that. I was amused that she fell for this trick. It put a cloud over there relationship that hovered and grew blacker as I know it would. Not a nice thing to do, but what can I say. I had anger; I had resentment for all I had gone through for this man, all I had given up, and then for this to happen. I could not bear to give him another chance; I could not bear the pain again. She asked me how I could have been so cruel to throw him out. In the end, a few weeks later, she threw him out also. I wanted to call her and ask her the question, but didn’t. Tim and I stayed in contact off and on as friends, even though I always cared so much more for him. He helped me move once, and we had a really good talk about everything. It was good, it was cleansing. It didn’t change what had happened, but it softened the blow so to speak.
There are so many more details involved, but this would probably get much to boring. So we went on with our lives, and on occasion met up with each other, talked and went on. I was in a trance much of the time, just wanted the pain to end, so I could move on. A Lady at the nightclub had a brother she wanted to me, he was very tall, pretty nice guy, Postal worked. So I agreed to start seeing him. And we dated etc,,, and I had told him what happened and I am not able to be very giving right now, maybe in the further, normally I am very giving person. I had suffered a great loss and needed time to heal.
So I thought he understood this, as least he said he did. We dated for quite awhile, and it was hard due to out schedules. Andre, his name, was kind of on a face track type of guy, been divorced 3 times already. So he was fun to be with but he was wanted more. Asking t go to my job at night. And I would say, so who is going to be paying my bills. He had no answer. This went on for a while; Andre had spoken about not seeing other people and that was fine with me as I as having enough problems relating to any of it at the moment.
After awhile, of my working, being busy, etc,,I called and he is put on his boat, A boat I had never been asked out on. I asked his sister is he was with someone else. She said yeah, he is with friend, Light bulb here again!!!!!!!!,,I asked id she female, Oh yes, she was. Boy I have a great track record, He was the one wanted us to see only each other. Maybe this was cursed from the get go. He wanted to move faster, and I wasn’t able to, so there ya go…After he got home from his boat ride, I totally went off on him so bad, yelling, screaming, etc..And he was shocked, lol, Needless to say, it was over.
I ended up in the Hospital with severe abdominal pain for 5 days. I had to call Andre to see if he would go by and feed my dog. That was pretty hard after all I had said. He had his sister do it for me, and I thanked him, end of our story. But I was glad to get home from the Hospital and the outcome was most likely a ruptured ovarian cyst, which took care of itself. From someone at the nightclub I caught Mono, and not the fun way. Just by being around them. I got very sick, very tired, and ended up losing my position at the nightclub. I could go back to it most likely at that one or another one, when I got better. In the meantime, my rent was due and so on. My Mom had a house over in Kissimmee, and I called and asked Tim to help me move over there. On the way home we had a really good lengthy conversation about our relationship, and we remained friends. After several weeks I had acquired a job over there but it only pain min wage, and I couldn’t exist on that, and I had problems with sleeping. My Doctor had put me on Ambien, and then out of the blue decided I shouldn’t take it anymore. So I ended up going through withdrawals that put me back in the Hospital for a night and on a medication to help me with that. I had to leave the job over there, no big lose. They had me work 9 hours, by myself in the customer service booth, with no break. And when I left she had the gall to say, “How could I do this to them” Ha…
In the end I ended up moving back up north to Virginia with my sister till I got the job with State Farm Insurance, which I lost 3 years later due to my current illness. I wrote a letter to Tim shortly after getting up here, and he wrote a short one back. I decided it was best to just let it go, and don’t look back, though sometimes it is very hard. I think about Tim allot, and wonder how he is doing. Is he remarried yet?, How are his kids? And so on. But that is basically the story of Tim, and there were many more details, but this is the highlights.
I had to get passed allot of anger and resentment towards Tim for all I had sacrificed for him, all the help I gave him, and then for him to chase around some other girl. It was very painful, but today, several years later, I can say I hope he is doing well, and I still care about him and most likely always will. Since I sated Andre, I haven't dated anyone, and it has been 7 years. When I felt that I wouldn't mind starting to date again, I fell ill and so that has prevented me from doing it. I have no energy for it.

Tuesday, January 31, 2006

Mamo Whamo update

Hi,
Thanks goodness all is well, after the ultrasound, it turned out to be lumph nodes that have gotten alittle bigger. Though I will have to keep a watch on it, so far so good,
Just Me....

Fibromyalgia update

Hello,
Thanks to my most recent reply. I feel very fortunate to have gotten Mediciad. I am scared when it may end. You never know with it. Not like one you pay for, but for now I have it. In a couple days I go before a review to make sure I can keep it. Recently I went to a new Rheumotologist, and I was pleased with him. He did many blood tests that I wanted done before , but my Kaiser Doctor said it wasn't neccessary. The test results confirmed his suspician that I have Psoriatic Arthritis. I had never heard of it, and I was kinda speehless, cause with all the research I have done, I had never come acrossed it before. He asked if my Mom had Psoriasis, and I confirmed she did. It seems to run in families and attacks those who have Psoriasis. I am sure that is spelled wrong, but you know what it is, that skin condition. He put me on Methotrexate. It is given also for Rheumotoid Arthritis, but used for this type to. I hadn't gotten a flu shot, and I got the flu. I had an appt to get the shot, but when I got there, they were out, a couple weeks later, I got the flu. The medication lowers your immunity, so I had only taken it for 2 weeks, and had to stop due to being sick. So I have missed 2 doses. It scares me that it lowers my immunity, cause I get sick alot. Anyway, it did help me some. I was surprised. The blood test showed my C-reactive protein at 32, and the highest for normal is 3.2, yes, 3.2...so my inflammation is very high due to this Arthritis. And I also am very low on B-12 so he put me on that to see how I did, if my body will absorb it. If not, I'll have to go with shots. I was in physical therapy for my knee, and the med seemed to help it. I was having so much trouble doing the therapy exercises. If I laid on my side it hurt my hips, back hurt my back, etc...Basically, the knee cap rides very rough over the cartilage and cause more inflammation. Chondlamasia, or something like that. The Rheumy noticed right away my knee was swollen.
When I got the flu, I got really sick, didn't even realize how sick I was..but I am now improving. Next year I will get it no matter what !!!!
whew..anyway, the med lowered my immunity so I got really sick. Bummer. Scarey....But if the med helps me, and I need to get all this inflammation under control. I can't take Ansaids(Ibuprofin) due to stomach problems from it, so that is out. I like this Doctor very much so far, I hope it continues. No one else diagnosed this condition, and he did almost immed. Amazing, and it is on top of the Fibromyalgia, and Chronic Fatigue. Of course, people can relate more to Arthritis, they know more about it, though this is a very different kind, it breaks down into 6 different types. The one I think I have starts with Spon....and I don't remember the rest of the spelling. Its all on the internet.
So that's where I am at right now. Waiting to get better, and continue this med and see what happens. Still trying to get sinus surgery, carpel tunnel surgery. Thanks for stopping in, if you have this Arthritis, I would love to hear from you and to hear how it has effected you,
Thanks,
Just Me....

Saturday, December 10, 2005

Mama Whamo !!!!!!!

Hey there,
Bad news for me, have 2 spots on my Mamogram that weren't there before. Have to go get a Sonogram done. Oh dear, whoa is me. worried to death of course. I have to call Monday and set it up as soon as I can. Please pray for me that it is nothing...
Thanks,,,
Just Me.....

Saturday, November 19, 2005

The following picture

is taken from a site at
http://catalog.nucleusinc.com
I am listing that site, as this is under copywright @ at this site, they have some very good pictures of Fibro pain locations !!!
Just Me....

Great pictures of Fibro pain locations
Posted by Picasa

Monday, November 14, 2005

Hard time

Hi,
I am having such a hard time right now, being so broke, and no one cares. It is so hard to handle on top of the illness.
Oh God, maybe it is just that it is winter, and I am feeling so bad for so many days, but life just really sucks right now, sorry folks, just had to vent to a blank page, cause there is no one who will listen, no friends, family is sick of it, and no guys anywhere to be seen. Boy did I make some major mistakes in my life, first to admit it. Why didn't I marry one of the guys who offered, I was so afraid of being hurt, and look at me now, Wowwwweee. Can it get any worse.

I pray so hard I get headaches, and even God seems to be to busy, and I know there are so many things going on right now, with all the disasters, but I wish he could give be a little help here and there. Show me the way, I have always worked more than one job at a time, and now I am like why can't I do this anymre, let me get better, or help me with my money. I pray, and pray, and pray, and I don't know what else to do. so sad, me right now...and crying hurts my head so bad, a can't even do that, I just sit and stare and think, what am I doing wrong, where no one will help me, no one cares.........
But it never crosses they minds. I guess I have splittled enough about all my heartaches for one night. yaya
I feel like I am in some kind if an experiment to see how much I can take, but it isn't much....
Just Me............

Tuesday, November 08, 2005

Broke

I am so tired of not having any money, and not being able to live on my own. I miss my independence so much. I miss little things like choosing what I will eat for dinner, and having privacy. I have lost so much, and I don't know that I will ever have anything again. So depressing...
Just Me...........

update

I go to a new Rheumotologist tomorrow, a male, prefer a female. I only hope he is good, and not saying all in your head crap. I go back to the EN&T on the 21st. maybe surgery, we will see.
Just Me........

Tim story

I still plan on telling the story, just have been very tired lately, and to many headaches, but I will eventually do it. Actually I had it done on here one night and I lost it all, I was frustrated, so now I know to do everything in Word first, then copy and paste so I don't loose all that effort.
Just Me.........

Message Board--kicked off

Hi all,
I had posted previously a message board that I really liked, and now I have been kicked off it. I posted the URL of another message board that I found on it, and they kicked me off for doing that. I was told that it is their policy not to do that. I read their rules, and I don’t see where it says specifically not to do that. So I have emailed them several times to see if they would allow me back on, and they won’t. I didn’t realize how much I would miss this message board on Fibromyalgia, now I feel like I have lost one of the few outlets I have. What a real bummer. I can’t believe they would be so cruel.
Very sad for me, and I feel such anger, and sadness at the same time. So I have to say that I don’t recommend the site if they can be so un-feeling to its members.
Just Me….

Sunday, October 30, 2005

I'll be back soon,

I am just having much pain right now, so I will be back soon with the story of Tim, very interesting one to come,
Just Me....

correction

the last word below is world, in case you weren't sure...
Just Me.....

Help in starting a journal/blog

The Journey suggests some basic topics that will get you started.
Who am I? How do I know who I am?
What does it mean to be content?
Do I listen more or talk more? Why?
What does it mean to nurture myself?
Am I comfortable with my feelings? What makes me cry or laugh? When am I comfortable expressing my feelings?
How much of my time is spent with other people and how much am I alone?
Why do bad things happen? Who is responsible when something bad happens to me?
How do I handle stress? Do I welcome challenges?
What is my unique gift to the wor

Wednesday, October 26, 2005

How bout an update and a story about Tim

Hey there, I went to the Ear, Nose & Throat Doctor, and he is going to do the surgery for me, so maybe soon I won't sound like a fog horn all day. He said I have a deveated septum, which is basically crooked, and one of the bones is to large and will be shaved down a tad. I am not looking forward to a surgery, but I am looking forward to not having chronic sinus problems, everyday, 365, 24/7, etc...so hopefully it works. He also had me do a Barium Swallow test, very easy to do, just swallow this funky chalky stuff and they watch on a screen as it goes down. I do not have GERD, which I didn't think I did, but Doc said that people with chronic sinus troubles frequently have it. So my surgery date should be around Thanksgiving. Maybe I won't eat much, that could be good.!!!
I have to go back to the orthopedic Doc about my knees, he gave me this little strap like thing to wear around my leg just below the petella, and it is supposed to help allign the petella. But it bothered the muscles in the back of my calf to much, so it wasn't worn. I think the next step is the MRI to see if there is any cartilage damage since it is all crunchy inside my knee. X-rays didn't show much, so the MRI most likely next. Bad knees run in my family. My one brother had a replacement done, and my other brother needs one done.I sure hope mine doesn't come to that. UGH !!!
I finally was able to obtain my Ambien for sleep through Medicaid after trying 2 other meds first. So I am very glad about that. I hate to mess with meds when you know they are working for you.
With the weather becoming colder and rainy I am having more bad days. Winter is like that, In the winter I get hardly any good, or even ok days. I started back to pool walking, and in the process, over did it, and I have spent the last week recovering from injuring my hip. Hurt to walk, etc..now it seems better so I want to go back, but need to make sure I go slow, and stop when I need to. Just Damn frustrating when I know I should be able to do more, but can't. Can't believe what I used to be able to do, such a difference. Anyhow, just stopping in to give an update, my next article will be about Tim, whom was my boyfriend in Florida, and his motorcycle accident. Fun, fun, till then,
If you have Fibromyalgia and/or Chronic fatigue, hang in there, would love to hear from some of the guys with it, I know you have to hide it, cause you want to be macho, and not be embarressed, but you won't be here,
Take care
Just Me....

Wednesday, October 19, 2005

Hello Dee, (Fibromyalgia and Me)

Thanks so much for visiting my blog. I haven’t tried the Klonopin for sleep though it would probably help. I finally got approved for the Ambien, I am so relieved. I have only been taking the Klonopin for the headaches, and it does help a little, for a couple hours or so. I never had to much luck with the anti inflammatories, plus they tear up my stomach. I tried Vioxx, celebrex, and recently Mobic, and of course the Advil and Motrin. The ultram has been the only medication to help with my pain so far, and at times the Vicodin when it is really bad. But the Doctors I go to don’t want to prescribe that, I think they are afraid they will loose their license. It would be nice to be trusted, after all I only get it once every 6 months or so. Anyway, I am just glad I can get the ultram.
I also have the restless leg thing, have had it all my life, I rock my legs till I fall asleep. My Dad used to put his hand on my knee in church to stop it from going up and down.
I also went through the denial of having it. It took me about a year to 1-½ years to accept it, and to accept my limitations. I miss dancing, ice-skating, and walking/hiking est…. went through a mourning process saying goodbye to my loved hobbies, and activities.
I just started back to pool walking, and over did it yesterday. It hurts my hip to walk, and I feel like I hardly did anything, Geeezzz !
So I have to be more careful when I go.
I don’t have to much trouble with memory on the ambient other than sometimes forgetting the last chapter I read in a book, but when I go back and read it, it is like, Oh yeah, I remember now. So I am glad I don’t have that.
I will remember about getting the 3 month supply, I may need that in the future.
Mediciad cut way back on the allowable medications, Sept. 22, they posted the new list and it is very limited. They are trying to save money, and one of the pharmaceutical companies filed suit against them, but I don’t know of an outcome yet.
Once again, thanks so much for stopping in and keep in touchJust Me….

Thursday, October 13, 2005

Advertising on my blog

Hi,
I have been removing comments from one person who keeps sending comments as advertising for his web sites, I don't mind one or two, but this continues, 2-3 times a week, so if you see comments removed that is why,
Thanks for coming by,
Just Me...

Tuesday, October 04, 2005

Fibromyalgia and Me

Hello,
Since I was last on, I lost my health insurance through Kaiser, but I was approved for Medicaid for the disabled. I am so glad that came through. Didn't know what I was going to do. The only problem is they are not authorizing my Ambien for aleep. They have a preferred drug list which in the last year has been cut drastically. I have to try Sonata first, and I have already tried it in the past and it didn't wotk. It is not prescribed for persons who wake up during the night, which I do. So even though it isn't even prescribed for my problem, I have to try it first. I dropped my script off at Wal-Mart 9 days ago, and they still didn't have it taken care of. I am def. going to go to another Pharmact after this. They never get them right. Sometimes they don't have enough meds on hand, or it isn't ready and it takes 2-3 trips to get it, not worth this gas money. So I am going elsewhere. So tonight I will be sleepless, tossing in my bed, UGH, I really hate that feeling.
My Mom and her gentleman friend are back to normal now, so that is a relief.
I enjoy a message board for Fibro very much, and go to it many times a month. I have started going to Doctors under the Medicaid, and hope to get my sinus surgery, carpel tunnel surgery, and back to pool walking. I got my knees checked and it seems to be an irritation behind the knee cap, so physical therapy is prescribed. I know that the extra weight I carry doesn't help, and the Doctor was glad I recognized that. He said that people much heavier than me swore it had no impact. Well, it would only make sense that the more weight you put on your joints, the more they will be stressed. He said I could take Nsaids, but they tear up my stomach so, I prefer ice, etc...
My new Doctor said he would not prescribe narcotics for chronic pain, I was like, " I didn't ask you for them!"..but it is because everyone thinks that's how addicts are created which is very far from the truth. It has been proven, that very few persons with chronic pain mis-use their medication. It really makes it hard for those who need it. He is keeping me on the Ultram which is fine, that's what I wanted. If he had said no to that, I would have left and found another Doctor. And in the future, if he won't I will go elsewhere. It is the only med I have found to help with my pain, others are different. Not all meds work for everyone. I also am going to a new Rheumotologist, so I am hoping they are familiar and a believer with Fibro.
I still have the headaches, but I found that Klonipin helps some with that , but not with the migraines. I am going to ask also about Botox injections for headaches, I have read where it has helped some.
Well, I guess those are the basics for now, be back soon,
Thanks for stopping by..
Just Me....

Monday, August 22, 2005

Fibromyalgia updates

Hello folks,
It's been crazy lately. My Mom and her gentleman friend have been sick, and he had a major surgery. He also lives here. So I have been doing so much , and it takes its toll on me. Any free time I have is spent trying to get some extra rest. I wish I could get a lightweight electric scooter, but my Doctor won't do it cause it would cost her insurance company to much money. God forbid they payout on something other than drugs. I also want to get a cane that turns into a chair so I can sit down when I have to go shopping. God, my feet hurt so bad sometimes. Well, at least she is getting me the handicapped sticker. She'll do that, but not get me anything to help me get around. I only need it on my bad days, and now on bad days I have to go get perscriptions, take them to Doc. appointments etc..the rest of my family have helped out with a couple long trips to the Doc, but everyday stuff never ends. Since I live here, it all falls on me. I love my Mom, and I will do what has to be done, but I wish there was more help. Anyway, life goes on, bye for now....gotta take advantage of my time to rest..
Just Me.........

Sunday, June 12, 2005

Ebay

Hi,
Any body visiting here from ebay. My ID is yonder01(thats a zero, and a one on the end) if you want to see all my auctions. They have a search on the site for searching on sellers ID to see their ebay items.
http://search.ebay.com/ws/search/AdvSearch?sofindtype=8&ssPageName=h:h:fitem:US
This link will let you search for my oyhrt items,
Thanks
Just Me

Wednesday, June 08, 2005

Previous blogs

Fibromyalgia

Hi,
Is anyone else with Fibro and chronic fatigue reading this post. It is so disheartening to see my country give billions of dollars away to other countries when we have so many people here who need help and can't obtain it. Social Security is in trouble they say, well for Gods sakes stop sending all our money over seas.Please take care of your own Uncle Sam. People are loosing their homes, their insurance, their medication, their spouces due to the stress of it all. People whom are unemployed have stopped looking, their benifits ran out, and they fall off the list, and then are not counted as unemployed. The numbers are higher then what is being reported. I like Bush as a President, he is no worse then any other where these issues are concerned. I just do not understand how our government can turn their heads on their own people. Isn't that what we punish other countries for doing, and the government does it here. People are dying from lack of insurance, money etc...It just does not make sense. I have always been a very independent person, never needed anyone's help. I always took care of my self, and I helped many people along the way, also did volunteer work for different charities. And now I have to grovel and ask for help and it isn't there. And in order to ever try to get it, it is a process that takes years. The government would prefer we die off then cause them any hassles. Many are dieing off, and answering the governments prayers. What kind of a country is it that turns its back on its own people who need help, through no fault of their own. I didn't misbehave, I didn't commit a crime, I didn't do anything wrong except try to make it in this world, and just by being a hard working, taxpaying, american. What has it gotton me, No helps from anyone. My own disability insurance from my company that I paid for, denied me, even after my Doctor wrote 3 different letters. What more for Gods sake do you want, me in a body bag !!!!
It is just so so so so , stupid........inconceivable...............heartless,,,,,,,,,,,,,cruel.............blind....................Please open your eyes to us down here in the back yard suffering, needing your help. It wouldn't take all that much effort to help us and it would be a drop in the bucket compared to what we send over to the other nations.
Think of how much more productive we could be to society if we got the help we needed to try to get our lives back together.
OK, I am done with my ramblings for now, But they are the TRUTH !!!
Just Me....

Sunday, May 15, 2005

Ebay

Look for auctions by yonder01 in the search on sellers ares
bye bye
Guess ya all have a enough of the Green Giants added ingrediants, specially if ya are sitting down for chow. I have been pretty sick for awhile with this Fibromyalgia and Chronc Fatigue stuff. I wish there was a way to get the medical research community to really go hard at this, sink their teeth into it to try and come up with a cure. Maybe even find out what causes it. I am leaning towards a virus, but who knows. I just want to get better and have my life back.I read so much stuff, and this article says take this supplement and you'll feel better, and the next says take this medicine and you'll feel better. So I really don't know what to do. They are many articles that have stated they have found little pieces to the puzzle, not sure if it is good or bad. I just want the whole picture, that the medical community can agree on and what to do for it.
Some researchers say its a viris, many virues, a brain abnormaty, an immune system response disease. What to eat, what not to eat. How to exercise, not to exercise. I can't hardly do that anyway.
Oh gosh, it is all just so frustrating, and everyday my life slips farther and farther away from me...I just want it back. Pray for me, Please ask your God to help me. I am a good person. I treat others well,I have no enemies that I know of, and I pray too.I have always tryed to treat others with respect no matter who they were or their status in life.
Monopoly is an interesting game. Many think we start life by being delt our hand, and we should be able to take that hand and end up in a good place. Many of us do. But not everyone does.They start in Monopoly with the same amount of money, and in the end we can't all win. So, I guess in this here game I am one of the loosers, as in life's game. I have much to be thankful for, but it has been so hard to have to let go off my life, who I was, what I had, my friends, my activites, my hobbies, all of it. It really knocks one down to the lowest peg.
Take care,
yonder.......

Wednesday, April 27, 2005

Read story below Still BUGGED about Green Giant


Read story below
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My Green Giant meal pictures
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Pictures from my Green Giant meal
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Tuesday, April 26, 2005

Still BUGGED about Green Giant

I was at work on Friday and made in the microwave one of the Green Giant pouches. It was the Alfredo Pasta. After heating it and pouring it out onto a plate I discovered a large black beetle like bug in it. I was appalled. I called the 1-800 number and was informed that they would send me coupons for more of their products. Well, at this point I feel unable to enjoy anymore of their products as I would be dissecting it everytime I tried to eat it. I have a hardtme eating anything resembling this type of meal cause I am afraid It will happen again. After finding something like this, I can't believe that's is all they do. "Oh well, sorry about that".....And a bug that big getting through the quality process is amazing to me. I am including photos of it so you get the picture(nopun intended) of what I am talking about. Needless to say I went without a meal that day. So you may view these photos then you decide. AS YOU CAN SEE THIS IS A RATHER LARGE BUG, AND I DON'T FEEL LIKE WELL, WERE SORRY IS ENOUGH. WHAT IF I HAD BEEN COOKING LATE AT NIGHT AND DECIDED TO EAT BY THE TV, WITHOUT LOOKING AT IT FIRST. I JUST THINK THIS IS REALLY AWFUL. BAR CODE 020000120881

Friday, April 15, 2005

Letter from my sister

This letter is to document the continuous decline in Jeanette French’s health.

Jeanette moved from Florida in May 2001 to Northern Virginia in order to live closer to her family. She moved into a townhouse with her sister in Springfield, Virginia. After being in the Northern Virginia area for approximately 5 months she began employment with the State Farm Insurance Company during October 2001.

Jeanette has always been a very adventurous and active person. However, after moving into the townhouse with me (her sister) she began experiencing unexplained pain in her legs and feet in addition to having carpal tunnel symptoms. She began to experience insomnia and resorted to taking allergy medicine at night which made her drowsy enabling her to sleep.

She sought the professional help of numerous podiatrists, hoping to find relief for the pain in her feet. She even visited doctors outside of her HMO at her own expense because the persistent pain in her feet was causing limitations as far as walking, standing, etc. The doctors provided various arch supports, etc.; however, they provided no relief to her discomfort.

Her discomfort seemed to escalate requiring her to have to go to bed as soon as she got home from work, often staying in bed the entire evening until the next morning. She seemed to be having discomfort and pain throughout her body more often.

After living with me for approximately 9 months, Jeanette was diagnosed as having fibromyalgia. Her carpal tunnel symptoms had increased, limiting her ability to perform repetitive tasks both at home and work.

As her condition progressed, it became necessary to stay in bed more often for longer periods of time. This was due to complete body pain (i.e., aching and pain throughout her body, migraine headaches that lasted for days, overall weakness). It reached a point that it started to affect her ability to maintain good attendance at work.

After receiving the diagnosis of fibromyalgia, she applied to be protected under the Family Medical Leave Act (FMLA) through her employer. Her condition had progressed to the point that she was literally forced to miss work because of the severe chronic pain that she was experiencing.

Jeanette, normally a very family-oriented person, stopped participating in a number of family events because her condition required her to remain in bed, sometimes for more than one day. She rarely leaves home and when she does she remains close to home because her ability to function for a long time without having to rest and/or lie down has been greatly diminished due to her chronic pain.

It became necessary for her to rely on pain medication on a daily basis to just make it through the day.

Because of the chronic pain and her current employment problems she has experienced a great deal of stress, anxiety, and depression. This has required numerous medications to help her.

In addition, to the chronic pain that has become her daily challenge, she has had to add layers of padding to her bed because her discomfort has reached such a level that its uncomfortable for her to lay down on her bed. She applies heat and ice to the various areas on her body to try and obtain some relief to the severe and constant pain.

As her condition progresses, other symptoms become part of her condition, such as, chronic fatigue, irritable bowel syndrome requiring frequent and painful trips to the bathroom, unable to tolerate climbing stairs because of leg and knee pain, pain and stiffness in all muscles.

Because there is no cure for this condition, and Jeanette’s symptoms continue to become progressively worse, it has become apparent that she is unable to maintain a normal schedule. Her “bad days” are much more frequent than her “good days”. In view of the fact that she needs frequent rest periods and experiences such a high level of chronic pain routinely, she is unable to hold down a job.

Obviously, I have known Jeanette all my life and she has always been an adventurous, physical, and active person. She has traveled all over the United States, participated in many types of activities such as horseback riding, hiking, biking, and white water rafting. She has never led an ordinary, mundane life nor has she ever been a lazy, lethargic person. This condition has radically changed her life and left her a prisoner in her own body. She still has the desire and craving to live a normal life, however, the diagnosis she has been given indicates that this isn’t possible.

It is my opinion that it is totally impossible to expect someone in this condition to function at the levels of expectations given to a normally functioning individual. It is also unreasonable to expect them to maintain a daily working routine that someone else can achieve with little or no effort because they are free from the constant pain and deterioration of their entire body.

Please consider this documentation and as an eye-witness account of the continued deterioration of my sister’s health and her inability to perform and function at a normal level.

Thank you

Jeanette's sister

Letter from my friend

August 27, 2004


To Whom It May Concern:

RE: This letter is to help Jeanette French with her medical & financial situation.

I have known Jeanette for over 20 years. We met back in the early 80’s when I rented a room from her. She was very active and was always on the go: camping, hiking, traveling, dancing and taking care of a large 4-bedroom house that she rented. We have stayed in contact for many years, as she moved to Florida and back to Virginia. After living with her Sister in Virginia for a few years, Jeanette decided to move in and rent a room from me in my town house. Since I had lived with her in the past I noticed she is not the same person she was many years ago. Her health had declined dramatically. I guess I didn’t really understand her conditions until she had moved in with me. I knew she had been diagnosis with fibromyalgia, but did not realize this was such a debilitating condition. After talking with a few people who know others who live with fibromyalgia, I have started to understand some of the symptoms. Jeanette would have headaches, a lot of body pain, and extreme tiredness. She was taking painkillers that were prescribed by her doctor.

As friends we would try to make plans to do things in the evenings or on weekends, but most times Jeanette would not be able to participate due to her condition. In most cases she is not able to commit to anything, because she does not know when she is going to have a flare-up. It is a real shame that there is not a cure or at least some type of medication that could offer her more relief, so she could lead a normal life.

During the year that Jeanette lived with me, she missed work at least one or two days a week. After having to leave her job due to increased symptoms from the Fibromyalgia, Jeanette was forced to move in with her mother where she is not paying rent. I’m sure this situation cannot last forever. I only hope that this letter could help Jeanette obtain some type of financial help for her condition.

I believe that fibromyalgia needs to be recognized as a debilitating illness that needs more research and also needs to be recognized by the government that these people are struggling and need financial help.

For any questions or concerns you may contact me at the number listed below.

Thank you for your time,
Diane

Monday, April 11, 2005

My poem on Fibromyalgia

Fibromyalgia


I gotta get out of this frame
A tight shell that contains my brain
A little crack is all I need
A tiny wiggle and I'll be free
Drugs lift me to a place out of insane
For awhile I can float above my crane
Nothing here to see, I don't bleed
It's really there, I continue to plead
There's no light, no hope, I still remain
I find no way out of this prison domain
Mack trucks roll over me at low speeds
I awake to feel their evil deeds
I cry, I hope, I research, and I complain
Everyday is a challenge, an energy drain
A cure for it, can someone plant the seed
A new picture to frame, the old one to recede

Tuesday, April 05, 2005

Million Letter Campaign for Fibromyalgia

Please visit web site, and write those letters !!!!!!!!
http://www.fms-help.com/letter.htm

Saturday, April 02, 2005

A Little bit about my past, if ya wanna know

It is a bit interesting. I put it up in bits and pieces.
I didn't get a degree when I was younger, to much crap going on. So when I was in my 30's and living in Fl. I went part time and got my Associates degree in Human Services. I did 2 Practicums (6 month each) and one was with the mentally ill over 55 in a live in facility. I got to sit in with the psychiatrist sessions, and no one else was allowed to. I had 4.0 and that was why they let me. It was so interesting. I felt like a fly on the wall, haha.. This was a place the patients lived in. And they were given meds etc there. It was for the Manic/Depressive and Schizophrenic(sp) patients. My spelling has gone down alot since I have gotten the Fibro. It makes you have what they call Fibro fog, a little fuzzy on some things. One of the patients would get lazer beams shot through his head if he went outside. One wanted to know who was making her flowers in the front of the building get smaller one day and larger the next(this is a problem with perceptions), and another man had the devil talking to him all the time. You could see the anguish in his face when it was happening.
One lady would give her self her injection of daily meds, and then stick the needle into the couch and leave it there. We tried to have music therapy which they loved, but the company wouldn't allow it due to insurance reasons. That was so sad. Their faces really lit up when they would hear the oldies. There were many group sessions where the therapist would continue to try to make them understand their illness. One woman got to where she knew the voices were not real. She was allowed to go for walks around the area.It was a great breakthrough for her. There was a field trip one day. We took them to the store to buy cigarettes or what ever they wanted. One man put on his heavy cost in 95 degree weather. It was a grest experience.

My second 6 months I did in the Deaf Service Center and I was amazed at the inventions that have been made for these persons, and the dogs are great !!!!!! There are lights that go on if someone knocks on the door. The TDY machines they can use to talk over the phone through typing is great too. I enjoyed using these. They have their own language, close to ours but alittle different. It was during my time here that Tim had his motorcycle accident, more on that later................
I did well in college, even aced algebra which I had to go to summer school for, when I was in high school.It seemed like there wasn't a course I was not interested in. Even the way a nuclear power plant worked interested me. I got A's in everything. What a difference it makes to go when you really want to learn.

I worked as a bathroom valet in a nightclub at night, and I did that for 9 years cause the money was so good. The mensroom always made more though. It was , I have to say an extremely interesting job. more on this later too....


And I had a consignment store there for over a year too. It was for Plus size women only. This was when there was hardly anyone else selling plus size clothing.I had some very good, loyal customers. I left it cause it was a very rough part of town. One day a man was shot and killed by the police in front of the store, and I watched him die, he had been shot 3 times,and he had gashed the policeman arm with a sharp shovel. I gave the policeman a white T-shirt to bandage the arm. They roped off the whole parking lot and my customers had to stay until the investigation was over, several hours. One lady piped up and said I should have a "Homicide Sale", Pretty funny. The man had been in the area for awhile and I even said Hi to him one day as he walked by the store. He gave me the most evil look. I believe he had mental problems, and should have been in an institution, but that's not possible when they de-institutionalized the mental homes. We need them badly to come back with these. Many lives would be saved if we had them again.
A friend and a fellow store owner shot himself in the head one day in his store. He had a printing shop. Apparently he had a conversation with his wife, and I believe she had met someone else. So it was a very sad day, and another day for our stores to be roped off by the police. More bad publicity for our area. The store was in a strip mall, and my store and his store were the only ones that weren't run by the vietnamese(sp). They said they didn't think he killed himself, and the guy the wife hooked up with was a bounty hunter. He had asked me out prior, but I didn't think I wanted to be involved with that type of life.They all went out as friends to bowling and to bars, and I suppose one thing lead to another. The man who died had been in my store the day before, and he was acting very strange. He paused at the door before leaving and was just looking at me. So maybe he did kill himself, cause it was like he was saying good bye to me. Very sad. He was a nice guy. I wish I had known he was going to do that, maybe I could have stopped him. Maybe......
On super bowl sunday, my store was broken into. They broke the front window, and made of with some change. They did alittle damage, but nothing like they could have done. I felt lucky for that.
One day I was working in the store, when I was closed. I was taking a break and sitting by the front window. A man got out of a bronco and he had heavy clothing on. I looked at him and thought, this guy is gonna rob the store across the street. His clothing was out of place for hot Florida. He came out and jumped into the bronco, and sure enough the police pulled up a few min. later. I went out and flagged them to come over. I gave them the description of the bronco, the other passengers, but didn't get the license plate number. However, on their next robbery attempt, they were caught after they left due to my description. They were from New York, traveling along on a robbery spree. They didn't get to far.
I really liked having the store and would do it again if I had my health. Oh well, glad I did it once.
The consignment stores in the area had a phone call list to let others know of problem customers. I got the call one day. The bow tie man he was called, was on his way. He would go into the stores and ask for the scarfs. He would want you to show him where they were. He would take one and wind it in his hands like he was going to strangle you. It gave him his kicks to upset the women. So when he came in and asked for the scarves, I pointed to them, He said can you show them to me, and I said, right there they are, you can look at them yourself. He promptly left. Jerk, sicko, !!!!!
I had several gay customers. They would compete in shows, wearing pretty dresses etc.I thought my customers would be offended at first, the next thing I knew they were helping them put costumes together and having a ball. The couple who were gay,brought back pictures to me of where they had won the competetion.
I had one fellow who came in and he liked to wear womens underwear. He was harmless, at least he never harmed me, thank goodness. He would come in and put the pretty things on and ask me to look and see what I thought. There was nothing left to the imagination. I could see it all. He did not get excited, and he wore this under his work clothes.
He was married, and he said he thought his wife may know about it, but he wasn't sure. He would stay around and keep me company and we would talk about lots of things. Amazing, he just liked the finer things on his body.
My mailman came by, would park his truck out of site and come in and spend some time with me. He was a very friendly and outgoing guy. He even helped me find my car at a dealership. I made sure he got the 50.00 finders fee they offered, and he took his wife out to dinner with it.Though we kidded around alot, he never stepped out of line with me. Almost everyday I was there by myself, and I stayed so busy cause I did everything myself. There was alot of work to it. I had an alarm around my neck that I could push a button and the police would respond. It made me feel safer, but I knew it wouldn't save my life when it came right down to it. I would be dead long before they arrived if that was a persons intention.
I had a set up with a local church where I donated clothing to that didn't sell and the owners didn't want it back. They loved getting the clothing and it was given to the needy of their parish for free.They would bring food by sometimes that was left over. Very nice women. When I closed the store, there were many who didn't want their clothing back and this church got it. They were so excited to get so much, but knew also that I would be gone.
In the short time I had this store, it gave me many unique experiences.

More later....
Just Me........