MY VIEWS

Mainly about my ordeal with becoming disabled, but with many of my opinions, experiences, and views. I am disabled by Fibromyalgia, Chrinic Fatigue Syndrome, Psoritric Arthritis, and chronic frequent migraines.

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Wednesday, April 27, 2005

Read story below Still BUGGED about Green Giant


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My Green Giant meal pictures
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Pictures from my Green Giant meal
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Tuesday, April 26, 2005

Still BUGGED about Green Giant

I was at work on Friday and made in the microwave one of the Green Giant pouches. It was the Alfredo Pasta. After heating it and pouring it out onto a plate I discovered a large black beetle like bug in it. I was appalled. I called the 1-800 number and was informed that they would send me coupons for more of their products. Well, at this point I feel unable to enjoy anymore of their products as I would be dissecting it everytime I tried to eat it. I have a hardtme eating anything resembling this type of meal cause I am afraid It will happen again. After finding something like this, I can't believe that's is all they do. "Oh well, sorry about that".....And a bug that big getting through the quality process is amazing to me. I am including photos of it so you get the picture(nopun intended) of what I am talking about. Needless to say I went without a meal that day. So you may view these photos then you decide. AS YOU CAN SEE THIS IS A RATHER LARGE BUG, AND I DON'T FEEL LIKE WELL, WERE SORRY IS ENOUGH. WHAT IF I HAD BEEN COOKING LATE AT NIGHT AND DECIDED TO EAT BY THE TV, WITHOUT LOOKING AT IT FIRST. I JUST THINK THIS IS REALLY AWFUL. BAR CODE 020000120881

Friday, April 15, 2005

Letter from my sister

This letter is to document the continuous decline in Jeanette French’s health.

Jeanette moved from Florida in May 2001 to Northern Virginia in order to live closer to her family. She moved into a townhouse with her sister in Springfield, Virginia. After being in the Northern Virginia area for approximately 5 months she began employment with the State Farm Insurance Company during October 2001.

Jeanette has always been a very adventurous and active person. However, after moving into the townhouse with me (her sister) she began experiencing unexplained pain in her legs and feet in addition to having carpal tunnel symptoms. She began to experience insomnia and resorted to taking allergy medicine at night which made her drowsy enabling her to sleep.

She sought the professional help of numerous podiatrists, hoping to find relief for the pain in her feet. She even visited doctors outside of her HMO at her own expense because the persistent pain in her feet was causing limitations as far as walking, standing, etc. The doctors provided various arch supports, etc.; however, they provided no relief to her discomfort.

Her discomfort seemed to escalate requiring her to have to go to bed as soon as she got home from work, often staying in bed the entire evening until the next morning. She seemed to be having discomfort and pain throughout her body more often.

After living with me for approximately 9 months, Jeanette was diagnosed as having fibromyalgia. Her carpal tunnel symptoms had increased, limiting her ability to perform repetitive tasks both at home and work.

As her condition progressed, it became necessary to stay in bed more often for longer periods of time. This was due to complete body pain (i.e., aching and pain throughout her body, migraine headaches that lasted for days, overall weakness). It reached a point that it started to affect her ability to maintain good attendance at work.

After receiving the diagnosis of fibromyalgia, she applied to be protected under the Family Medical Leave Act (FMLA) through her employer. Her condition had progressed to the point that she was literally forced to miss work because of the severe chronic pain that she was experiencing.

Jeanette, normally a very family-oriented person, stopped participating in a number of family events because her condition required her to remain in bed, sometimes for more than one day. She rarely leaves home and when she does she remains close to home because her ability to function for a long time without having to rest and/or lie down has been greatly diminished due to her chronic pain.

It became necessary for her to rely on pain medication on a daily basis to just make it through the day.

Because of the chronic pain and her current employment problems she has experienced a great deal of stress, anxiety, and depression. This has required numerous medications to help her.

In addition, to the chronic pain that has become her daily challenge, she has had to add layers of padding to her bed because her discomfort has reached such a level that its uncomfortable for her to lay down on her bed. She applies heat and ice to the various areas on her body to try and obtain some relief to the severe and constant pain.

As her condition progresses, other symptoms become part of her condition, such as, chronic fatigue, irritable bowel syndrome requiring frequent and painful trips to the bathroom, unable to tolerate climbing stairs because of leg and knee pain, pain and stiffness in all muscles.

Because there is no cure for this condition, and Jeanette’s symptoms continue to become progressively worse, it has become apparent that she is unable to maintain a normal schedule. Her “bad days” are much more frequent than her “good days”. In view of the fact that she needs frequent rest periods and experiences such a high level of chronic pain routinely, she is unable to hold down a job.

Obviously, I have known Jeanette all my life and she has always been an adventurous, physical, and active person. She has traveled all over the United States, participated in many types of activities such as horseback riding, hiking, biking, and white water rafting. She has never led an ordinary, mundane life nor has she ever been a lazy, lethargic person. This condition has radically changed her life and left her a prisoner in her own body. She still has the desire and craving to live a normal life, however, the diagnosis she has been given indicates that this isn’t possible.

It is my opinion that it is totally impossible to expect someone in this condition to function at the levels of expectations given to a normally functioning individual. It is also unreasonable to expect them to maintain a daily working routine that someone else can achieve with little or no effort because they are free from the constant pain and deterioration of their entire body.

Please consider this documentation and as an eye-witness account of the continued deterioration of my sister’s health and her inability to perform and function at a normal level.

Thank you

Jeanette's sister

Letter from my friend

August 27, 2004


To Whom It May Concern:

RE: This letter is to help Jeanette French with her medical & financial situation.

I have known Jeanette for over 20 years. We met back in the early 80’s when I rented a room from her. She was very active and was always on the go: camping, hiking, traveling, dancing and taking care of a large 4-bedroom house that she rented. We have stayed in contact for many years, as she moved to Florida and back to Virginia. After living with her Sister in Virginia for a few years, Jeanette decided to move in and rent a room from me in my town house. Since I had lived with her in the past I noticed she is not the same person she was many years ago. Her health had declined dramatically. I guess I didn’t really understand her conditions until she had moved in with me. I knew she had been diagnosis with fibromyalgia, but did not realize this was such a debilitating condition. After talking with a few people who know others who live with fibromyalgia, I have started to understand some of the symptoms. Jeanette would have headaches, a lot of body pain, and extreme tiredness. She was taking painkillers that were prescribed by her doctor.

As friends we would try to make plans to do things in the evenings or on weekends, but most times Jeanette would not be able to participate due to her condition. In most cases she is not able to commit to anything, because she does not know when she is going to have a flare-up. It is a real shame that there is not a cure or at least some type of medication that could offer her more relief, so she could lead a normal life.

During the year that Jeanette lived with me, she missed work at least one or two days a week. After having to leave her job due to increased symptoms from the Fibromyalgia, Jeanette was forced to move in with her mother where she is not paying rent. I’m sure this situation cannot last forever. I only hope that this letter could help Jeanette obtain some type of financial help for her condition.

I believe that fibromyalgia needs to be recognized as a debilitating illness that needs more research and also needs to be recognized by the government that these people are struggling and need financial help.

For any questions or concerns you may contact me at the number listed below.

Thank you for your time,
Diane

Monday, April 11, 2005

My poem on Fibromyalgia

Fibromyalgia


I gotta get out of this frame
A tight shell that contains my brain
A little crack is all I need
A tiny wiggle and I'll be free
Drugs lift me to a place out of insane
For awhile I can float above my crane
Nothing here to see, I don't bleed
It's really there, I continue to plead
There's no light, no hope, I still remain
I find no way out of this prison domain
Mack trucks roll over me at low speeds
I awake to feel their evil deeds
I cry, I hope, I research, and I complain
Everyday is a challenge, an energy drain
A cure for it, can someone plant the seed
A new picture to frame, the old one to recede

Tuesday, April 05, 2005

Million Letter Campaign for Fibromyalgia

Please visit web site, and write those letters !!!!!!!!
http://www.fms-help.com/letter.htm

Saturday, April 02, 2005

A Little bit about my past, if ya wanna know

It is a bit interesting. I put it up in bits and pieces.
I didn't get a degree when I was younger, to much crap going on. So when I was in my 30's and living in Fl. I went part time and got my Associates degree in Human Services. I did 2 Practicums (6 month each) and one was with the mentally ill over 55 in a live in facility. I got to sit in with the psychiatrist sessions, and no one else was allowed to. I had 4.0 and that was why they let me. It was so interesting. I felt like a fly on the wall, haha.. This was a place the patients lived in. And they were given meds etc there. It was for the Manic/Depressive and Schizophrenic(sp) patients. My spelling has gone down alot since I have gotten the Fibro. It makes you have what they call Fibro fog, a little fuzzy on some things. One of the patients would get lazer beams shot through his head if he went outside. One wanted to know who was making her flowers in the front of the building get smaller one day and larger the next(this is a problem with perceptions), and another man had the devil talking to him all the time. You could see the anguish in his face when it was happening.
One lady would give her self her injection of daily meds, and then stick the needle into the couch and leave it there. We tried to have music therapy which they loved, but the company wouldn't allow it due to insurance reasons. That was so sad. Their faces really lit up when they would hear the oldies. There were many group sessions where the therapist would continue to try to make them understand their illness. One woman got to where she knew the voices were not real. She was allowed to go for walks around the area.It was a great breakthrough for her. There was a field trip one day. We took them to the store to buy cigarettes or what ever they wanted. One man put on his heavy cost in 95 degree weather. It was a grest experience.

My second 6 months I did in the Deaf Service Center and I was amazed at the inventions that have been made for these persons, and the dogs are great !!!!!! There are lights that go on if someone knocks on the door. The TDY machines they can use to talk over the phone through typing is great too. I enjoyed using these. They have their own language, close to ours but alittle different. It was during my time here that Tim had his motorcycle accident, more on that later................
I did well in college, even aced algebra which I had to go to summer school for, when I was in high school.It seemed like there wasn't a course I was not interested in. Even the way a nuclear power plant worked interested me. I got A's in everything. What a difference it makes to go when you really want to learn.

I worked as a bathroom valet in a nightclub at night, and I did that for 9 years cause the money was so good. The mensroom always made more though. It was , I have to say an extremely interesting job. more on this later too....


And I had a consignment store there for over a year too. It was for Plus size women only. This was when there was hardly anyone else selling plus size clothing.I had some very good, loyal customers. I left it cause it was a very rough part of town. One day a man was shot and killed by the police in front of the store, and I watched him die, he had been shot 3 times,and he had gashed the policeman arm with a sharp shovel. I gave the policeman a white T-shirt to bandage the arm. They roped off the whole parking lot and my customers had to stay until the investigation was over, several hours. One lady piped up and said I should have a "Homicide Sale", Pretty funny. The man had been in the area for awhile and I even said Hi to him one day as he walked by the store. He gave me the most evil look. I believe he had mental problems, and should have been in an institution, but that's not possible when they de-institutionalized the mental homes. We need them badly to come back with these. Many lives would be saved if we had them again.
A friend and a fellow store owner shot himself in the head one day in his store. He had a printing shop. Apparently he had a conversation with his wife, and I believe she had met someone else. So it was a very sad day, and another day for our stores to be roped off by the police. More bad publicity for our area. The store was in a strip mall, and my store and his store were the only ones that weren't run by the vietnamese(sp). They said they didn't think he killed himself, and the guy the wife hooked up with was a bounty hunter. He had asked me out prior, but I didn't think I wanted to be involved with that type of life.They all went out as friends to bowling and to bars, and I suppose one thing lead to another. The man who died had been in my store the day before, and he was acting very strange. He paused at the door before leaving and was just looking at me. So maybe he did kill himself, cause it was like he was saying good bye to me. Very sad. He was a nice guy. I wish I had known he was going to do that, maybe I could have stopped him. Maybe......
On super bowl sunday, my store was broken into. They broke the front window, and made of with some change. They did alittle damage, but nothing like they could have done. I felt lucky for that.
One day I was working in the store, when I was closed. I was taking a break and sitting by the front window. A man got out of a bronco and he had heavy clothing on. I looked at him and thought, this guy is gonna rob the store across the street. His clothing was out of place for hot Florida. He came out and jumped into the bronco, and sure enough the police pulled up a few min. later. I went out and flagged them to come over. I gave them the description of the bronco, the other passengers, but didn't get the license plate number. However, on their next robbery attempt, they were caught after they left due to my description. They were from New York, traveling along on a robbery spree. They didn't get to far.
I really liked having the store and would do it again if I had my health. Oh well, glad I did it once.
The consignment stores in the area had a phone call list to let others know of problem customers. I got the call one day. The bow tie man he was called, was on his way. He would go into the stores and ask for the scarfs. He would want you to show him where they were. He would take one and wind it in his hands like he was going to strangle you. It gave him his kicks to upset the women. So when he came in and asked for the scarves, I pointed to them, He said can you show them to me, and I said, right there they are, you can look at them yourself. He promptly left. Jerk, sicko, !!!!!
I had several gay customers. They would compete in shows, wearing pretty dresses etc.I thought my customers would be offended at first, the next thing I knew they were helping them put costumes together and having a ball. The couple who were gay,brought back pictures to me of where they had won the competetion.
I had one fellow who came in and he liked to wear womens underwear. He was harmless, at least he never harmed me, thank goodness. He would come in and put the pretty things on and ask me to look and see what I thought. There was nothing left to the imagination. I could see it all. He did not get excited, and he wore this under his work clothes.
He was married, and he said he thought his wife may know about it, but he wasn't sure. He would stay around and keep me company and we would talk about lots of things. Amazing, he just liked the finer things on his body.
My mailman came by, would park his truck out of site and come in and spend some time with me. He was a very friendly and outgoing guy. He even helped me find my car at a dealership. I made sure he got the 50.00 finders fee they offered, and he took his wife out to dinner with it.Though we kidded around alot, he never stepped out of line with me. Almost everyday I was there by myself, and I stayed so busy cause I did everything myself. There was alot of work to it. I had an alarm around my neck that I could push a button and the police would respond. It made me feel safer, but I knew it wouldn't save my life when it came right down to it. I would be dead long before they arrived if that was a persons intention.
I had a set up with a local church where I donated clothing to that didn't sell and the owners didn't want it back. They loved getting the clothing and it was given to the needy of their parish for free.They would bring food by sometimes that was left over. Very nice women. When I closed the store, there were many who didn't want their clothing back and this church got it. They were so excited to get so much, but knew also that I would be gone.
In the short time I had this store, it gave me many unique experiences.

More later....
Just Me........

Parrots

Hi,
I would love to hear from folks who have parrots as pets. I want to hear your stories about how you got the bird, and what they are like. Their qualities, what they eat, etc...as you have read I have a Senegal Parrot, not a big bird, but a big personality.
Thanks,
Just Me......

Dating for the disabled

Hi,
Go to this web sire and sign up to see who is available for you.
www.whispers4u.com
It is a dating and meeting place for persons with disabilities. What a great idea.
Just Me.....