MY VIEWS

Mainly about my ordeal with becoming disabled, but with many of my opinions, experiences, and views. I am disabled by Fibromyalgia, Chrinic Fatigue Syndrome, Psoritric Arthritis, and chronic frequent migraines.

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Tuesday, January 31, 2006

Mamo Whamo update

Hi,
Thanks goodness all is well, after the ultrasound, it turned out to be lumph nodes that have gotten alittle bigger. Though I will have to keep a watch on it, so far so good,
Just Me....

Fibromyalgia update

Hello,
Thanks to my most recent reply. I feel very fortunate to have gotten Mediciad. I am scared when it may end. You never know with it. Not like one you pay for, but for now I have it. In a couple days I go before a review to make sure I can keep it. Recently I went to a new Rheumotologist, and I was pleased with him. He did many blood tests that I wanted done before , but my Kaiser Doctor said it wasn't neccessary. The test results confirmed his suspician that I have Psoriatic Arthritis. I had never heard of it, and I was kinda speehless, cause with all the research I have done, I had never come acrossed it before. He asked if my Mom had Psoriasis, and I confirmed she did. It seems to run in families and attacks those who have Psoriasis. I am sure that is spelled wrong, but you know what it is, that skin condition. He put me on Methotrexate. It is given also for Rheumotoid Arthritis, but used for this type to. I hadn't gotten a flu shot, and I got the flu. I had an appt to get the shot, but when I got there, they were out, a couple weeks later, I got the flu. The medication lowers your immunity, so I had only taken it for 2 weeks, and had to stop due to being sick. So I have missed 2 doses. It scares me that it lowers my immunity, cause I get sick alot. Anyway, it did help me some. I was surprised. The blood test showed my C-reactive protein at 32, and the highest for normal is 3.2, yes, 3.2...so my inflammation is very high due to this Arthritis. And I also am very low on B-12 so he put me on that to see how I did, if my body will absorb it. If not, I'll have to go with shots. I was in physical therapy for my knee, and the med seemed to help it. I was having so much trouble doing the therapy exercises. If I laid on my side it hurt my hips, back hurt my back, etc...Basically, the knee cap rides very rough over the cartilage and cause more inflammation. Chondlamasia, or something like that. The Rheumy noticed right away my knee was swollen.
When I got the flu, I got really sick, didn't even realize how sick I was..but I am now improving. Next year I will get it no matter what !!!!
whew..anyway, the med lowered my immunity so I got really sick. Bummer. Scarey....But if the med helps me, and I need to get all this inflammation under control. I can't take Ansaids(Ibuprofin) due to stomach problems from it, so that is out. I like this Doctor very much so far, I hope it continues. No one else diagnosed this condition, and he did almost immed. Amazing, and it is on top of the Fibromyalgia, and Chronic Fatigue. Of course, people can relate more to Arthritis, they know more about it, though this is a very different kind, it breaks down into 6 different types. The one I think I have starts with Spon....and I don't remember the rest of the spelling. Its all on the internet.
So that's where I am at right now. Waiting to get better, and continue this med and see what happens. Still trying to get sinus surgery, carpel tunnel surgery. Thanks for stopping in, if you have this Arthritis, I would love to hear from you and to hear how it has effected you,
Thanks,
Just Me....