MY VIEWS

Mainly about my ordeal with becoming disabled, but with many of my opinions, experiences, and views. I am disabled by Fibromyalgia, Chrinic Fatigue Syndrome, Psoritric Arthritis, and chronic frequent migraines.

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Sunday, July 05, 2020

I have a lot I need to put into writing to figure out my own feelings so I will try to be on here more and having my feelings and at the same time maybe getting a better grip on them, something constantly bother me last night and I have some anger and bad feelings about some of this stuff and I think if I go back to writing maybe it will help em and maybe s someone, if you find this blog boring you don't need to read it, I got a comment once that someone said it was boring and I wandered why they bothered to read it then, It is mainly to help me and maybe you as well. It seems like no matter what I have tried to do in life it always blows up in my face and never works out. I have made some changes at times that I wish I hadn't done and had just stayed where I was at the time and rode it out, but I didn't. I wanted to move forward but here I am with exactly nothing to show for my life. ugh...sadly. If you had commented on my blog way back when then it is good to see you back, and am hoping that you are all doing much better and much better then me....lol...kindly Just me...
Who says they love, but cares not for your safety? Who can see you have no food and doesn't buy you

groceries? Who see's your pain but wont talk to you about it, wont be there emotionally for you ? Who

blames you for being raped?...Who wont let you cry when you need to cry? Who only does with you what

they want to do, not what you want to do, ever? Who lies to you about the future ? Who uses you for their

own satisfaction ?...Never doing what you want to do and only doing what you both want to do ? Who

could not stand on their own 2 feet for just one year? All I asked for was one year, and you failed that

test....Who expects you to not be upset when you have lost so much?...I was the fool, not he. Why did we

meet, why did he enter my life, why did I not be able to walk away, he held me in an emotional trap. Why

was this allowed to happen.Why was I not stronger and not see it for what it was.

My life was so messed up, we never had a chance, he did not ever trust me fully as he would never

complete the act fully. He pulled out every time and I was on the pill. You really thought that would keep

em from getting pregnant, what stopped that was the pill, not your stupid pull outs, and you what, thought

I would trick you by saying I was pregnant, even after 12 years ???..what kind of man does that, not a

man a boy, a little boy with stupid ideas. It was a way to punish me, think you were keeping em from

tricking you...what was that. you knew I was on the pill for ovarian cyst issues. You must have found it felt

good to your self and not once did you ever think of me. Do you know that in 12 years you never not did

that. Really??? If it was so important what was wrong with a condom? You always took care of me and

that was great but this, this was at a very personal level and you would not talk to me about it, what is

that, head in the sand, call you the sand man, going through life with your head in the sand. You saw I

had to move out at 17 cause my father tried to punch me in the face cause I was with you next door, yes

just next door, and I was met the next day by him and he attacked me and I had to move out. Did you

help me with anything, No you did not. I had no furniture, I had to use cinder blocks, and thrown away

mattresses piled on top of each other for a bed. Left with my cloths and my art work, My art work was

stolen the first night we left our stuff there, I was devastated but you didn't give a crap. Did you once see

any food in that apartment, never. I was never able to buy groceries, never able to have food. When you

took me out to eat that was my on meals, and other then that how did you think I ate. 3 days or more with

out food, just 15 cent Pepsi's from work. If I brought home left overs Cornell at them while he did his

drugs. Why was I so stupid, I could had had anyone, but why did I stay with you, and then after 12 years

you left me for a married woman you had been seeing for 2 years, if I had dated a married man you

would have had a cow. Amazing. I guess that was what I for got having you move out on your own and

ask you to spend one year on your own before we married. What an eye opener. You had no idea where


the food in your home fridge came from, it was always just there and all you had to do was go home and

you had anything you wanted. I guess that was how it was supposed to be in a family, but maybe I was

more jealous then anything, cause I didn't have that, I had no one to help me anytime with anything, not

even you. But I was also hungry too. I would have thought you would have helped me more. Why was I

so stupid, why could I not see how selfish you were then. You would spend money as long as you were

there on a date but I never in 12 years asked you for one dime of your money, never. If I needed money I

did what I had to do to get it and at times you would have not liked it, but you never stepped up and

helped me so what was I supposed to do. You gad saved money all this time for us to have a home and

then she gets it all. It should have been half mine, is only we had married I would have had half of it.

Guess that was the plan all along, never share what you have with anyone, no matter how bad off they

were, is that what someone long ago taught you, your name comes through now loud and clear.
And you were not any wiser as you would have seen the trap this women set for you, she saw you, and

she knew what a great catch you would be, a father for her kids and husband earning money and who

she could make you feel like you were so need and so wonderful and all those little eyes with hero

worship in them. Well , looks like she won, she trapped you without you even realizing it, fooling yourself,

thinking we are just friends and all along you were seeing a married woman, who trapped you into

marriage. I could have told you I was pregnant and tricked you as well but why would I want to trick you

into marriage if you wanted her. It appears that it all worked out really well for you and me I never met

anyone who loved me enough or who could be loyal to me and I never allowed anyone to get that close

to me ever again. The marriage proposals came alot, but way to soon, 3 months, I don't think so, I can

not know you in 3 months nor you me. And then one guy married anther lady 2 weeks later after asking

me, really??..I guess I am better off alone but it sure would be nice to have someone I trusted and loved

in my life, but that is not going to ever happen, never. I do not think it happen very often anymore, people

are so very different now. You were so good until you went to work around all the guys and they changed

you, they ruined you into becoming someone you were not. They wanted you to be with another , not

me. And then when you moved out you changed even more, Rube told you stuff as well. It was along

time ago for some reason it continues to bother me and I am not rue why, so I am writing all this and maybe one day I can figure out why, I guess cause I trusted you and trust for me was broken along time ago.

Saturday, February 25, 2017

Looking back over Mom Life--more to come, I need to get this out !

HI am looking back on my Mom's death and her gentleman friends Bill, Mom was Muriel and he was Bill. I had to move to their house in WV from Va as I was unable to work anymore due to all my health issues, so I moved as I could not support myself, It took over 3 years of grueling fighting and hearings etc...the judge told many lies and was finally asked to stop down from his office due to all his lies. The only thing that saved me was that I had contacted Shelly Moore Capito, the congresswoman and she stepped on, got me another honest hearing and finally I got it . It took a very long 3 and 1.2 yers and 1/3 of my back pay went to a lawyer who did very little, I did most of the work , not the lawyer. once I started receiving the SS it was not enough for me to live on my own. My Mom and Bill continued to become sicker and I ended up being a caregiver when I was disabled myself. It was so hard, and my brothers were very little help, I felt alot of resentment towards them for this, I needed them to take het to her Lymphoma treatments as I would be up for 3 days as she was manic for 3 days after, day and night. They each did one and after that they would not do anymore. It left Bill taking her and me wishing I could go, one day Bill asked her to get something out of the car and she got lost in the parking lot and was so scared, some nice folks were able to get her back into the doctors office and they found her. I told Bill to never, ever do that again. She was scard going to these treatments with on;y bill as at times she did not know him, and it would have been so much better if a family member could have been there, my bothers, well I hold alot of anger and resentment over this, just a few hours out of your day and I am doing it 24/7, no breaks up all night with mom as she had sun-downers where she was up all night and roaming around the house, I soon had to put alarms on the doors and look for all the time, I lost her in a snow storm once and bill came to help and he got stuck, there was no one to call out in a field of snow, so I laid my coat down on the ground to get her legs on it as they were numb. I then went over and finally got Bill unstuck and asked him to go get the car, and he trudged off to egt it,m I knew he was tired too, once he got the car and we were only around the corner but it was a large slanted road. SO he had to drive around the block and down to where she was. I let her stay on my coat and was very worried about her being so cold. Once we got her into the van then she went into a blood sugar drop and I has to rush in and get something to help her through it, she was shaking and sweaty and very out of it, but finally I was able to get her settled down. And at that point we just sat in the van for awhile till she felt better. This all started when I was going to walk my sisters dog we were watching, I went to the bathroom and told Mom to wait till I came out to walk him so I could go with her, when I am out she had already taken him out, and I could not find her anywhere and I finally found her int he back yard of a neighbors house and she was stuck and already freezing and getting numb. It was a very scary episode.
I am currently up for my social security review and now live in Va, not WV, and I called shelly moore capitos office and now it is on the senate side and the congressional side, the lady I talked to, Liz was not very helpful, I had called her sev months ago when I got the first form and she never called me back, then I called her 2 weeks ago and no response. SO I wrote a letter to Shelly's office telling them about Liz not caring and how serious this was for me, and put itin the mail. Well, after I pout it inot the mailbox Liz called and said she spoke to Jenny, the lady whom used to handle it for me and said to fill out the form and send it in, I had already put my letter in the mailbox and I just let it still go out as I wanted Shelly to read it and see that I was not getting the help I really needed with this. I also am going to try to call Monday and try to talk to Jenny, she was very good at helping me and she usually made a call to SS and I would get a letter telling me they were not going to do a review at this time. I can not lose my disability, it would be awful, Presently I am living with my sister as I can not afford to live on my own and it affects how I eat as I do not feel comfortable here cook and there is not alot of room to keep stuff in the fridge. I eat alot of lean cuisine etc when I should be eating salads etc...I am just lucky my sister is allowing me to live here as otherwise I would be homeless. It was so ahrd to have to move from WV to Va, as I had made some good fiends there and it was all just ripped out from under me, Va it is not so easy to make friends and I get very lonely and bored, no one to talk to. I joined the red hatters group, not one close to me so I have to travel a bit to go to the functions. My sister has a very full life which makes it even harder as I so wish I know people around here like she did and my ability to get out alot is so limited. The time taking care of my Momand bill was so hard, he had full abdominal surgery every single yer as he had this mesh and it would get infected and every 9 months it would rupture and spew pus, g=blood etc all over the place and I had to deal with this by myself. I asked my Mom to being the phone an she brought me 3 remote controls, did not know what a phone was. that was the alzheimer's. It is so much more then just memory issues, you could not believe it. She forgot how to wipe herarlf after going to the bathroom, she would dress by putting on her shirt and the her bra. And she always wanted to go home even though it was her home, she oacked bags constantly to leave and I had to start piling them on a couch as I did not have the time yo keep unpacking them. She did not know where the bathroom was. He gentleman friend was a real sob, and he did not treat her well, he would tell her to go get something eat and she did not know how to do that, he was a real jerk and it was making my even harder.

I was making all the meals, dispensing pills, taking them to all Doc appts, and doing the home care that need to be done, at the same time trying to reason with Mom about all kinds of things, she in her time was very political and she would pack as she said Sarah Palin needed her to come to Alaska to help her, and she would get all dressed up ready to go and no one was taking her. I think I should have taken f=hoer for a ride and then said how much Sarah enjoyed her help, hoping she would think she did some stuff. She would say things that I had a very hard time answering. I felt so helpless at times. One night she came out and asked me where the other kids were, her childhood siblings and I said well they are all asleep and then she asked who the man in her bed was and I said that was Bill and she said who is Bill, so I had to set up a bed in the living room so she would not have to sleep with a strange man in her bed. She came in a told meand told him she needed to go to bed. He didn't have much to say so that was that. did better with that, but Bill would watch TV till late and she needed to go to bed, one night she came in my room and told me she really wanted to go to bed, so I went out, picked up the remote and turned the tv off, and he did not say much. I had started tucking her in at night, making her feel loved and she was alot like a little girl, then he started doing it and I was like you idiot, he wanted everyone to think he did all this stuff for her, so I just kept doing it  and he would come along behind me and do it too...ugh..I bouhgt her some new PJ's and she just loved them, nice clean bed and fresh PJ;s, nice and snugly. I wish I had  had more training of some kind that would gave given me some insight as to what I was going to be dealing with,at times she would get very upset about not being able to go home, I told bill, next time we will tell her the plumbing wasn't working and we had to wit for it to be fixed. I was so sorry later that I did not handle many circumstances the way I wish I could have. I got frustrated and angry and I was always on the verge of a break down....tears and more tears...each day was new, as you never knew where her mind would be on any given day, She would constantly ask for Mom and Dad, and I had to tell her they had passed and she got so upset thinking she did not go the their funeral, AI st her down one day and told her I would never tell her they had passed again as it was just to hard on her and me, they would just be out at the store etc...she did not asks for them as often and when she was in the home the last month of her life she asked and  she said I guess they are gone....it broke my heart, I so hope they were the first people she saw when she went o heaven.
One day Mom had a hair appt and she left and cm back and said she could not find that place, that is when I knew it was getting to the pit where she could not drive anymore, and she seemed to know this as she never tried again, I now this was so very scary for her, to get lost in your own small town neighborhood, I was so thankful she was able to get back home at all.
She developed the Lymphoma along side the Alzheimer's, and it was pretty hard on her. She told her friend and siblings. And as time went by she declined more and more. I have so much anger towards my brothers for not healing more, they could not out up with Bill for a few hours to give me a friggin break, one day my oldest brother came and took her out to lunch, I had to get up early, clean her up, dress her etc..and then they came back after 2 hour, I was like really, one hour...I thought they would take her for the day, maybe shopping or out for a drive or something, one hour, was to even Worth it for me. I could not believe it. I love my Mom dearly and I miss her so much, she was a very good Peron, strong moral, values and honest and a good person.but caregivers are supposed to get breaks, I was so burnt out, I was always so scared I would mess uo their mes or something else really bad, night and day,most people have help from their family. My sister would come on the week ends as she was still working but I still had to do meds etc, but st least it got her out and away from there house. I wish my brothers could have stayed there and given me some kind of break or tken her to their home for a day or do. No breaks, all on my shoulders, I walked around like a Zombie.




Tuesday, April 26, 2011

Embraced by the Light by Betty Eadie

If you have not read this book, I suggest that you do. Extremely good.
Note to a friend;

believe in this book I suggest. I can communicate with spirits, have done this all my life. Though I should say they communicate with me, really out of my hands. It is sort of a one way street. Though I have asked and gotten answers in return, like from my Mom.
The book is very real. Some of the stuff she says there is no way she could know unless she had communicated with spirits before. I have seen and read a lot of stuff and she is very real in her experience. So please know that she is telling the truth. I can vouch for her. I have never heard anyone else discuss some of the stuff she says about spirits and there is no way she could no unless it was for real, so trust her. When you read the book it is so helpful about going to the next life. God is real and we will be with him. The hard part is actually the dying process as we have never done it before, though this lady has, it really isn’t to bad if it is peaceful. I think it is if you have of trauma/pain etc..then that is the hard part. But when people are in a lot of pain, right before they die, they don’t feel it anymore. Mom’s spirit left her body hours before she actually died. 5 am,
I was walking the floor and asking,
why are you gone, you should be here with me, hugging her pillow and crying. I was so out of it, like I felt her spirit leaving the earth and the separation. I was not even aware of what I was saying, it was ike my spirit was talking to her spirit through my body, it’s words were coming out, my spirit felt the separation. It was a very , very hard few hours, I was really feeling her leaving.

I didn’t realize that was what was happening until my sister talked to me about it, and then we realized that was her spirit going home. When she actually died it was like I had already experienced her spirit leaving and when I saw her body at the home, it was like the light was gone. Don’t know how else to explain it, but when you read the book it is soooo enlightening. Her spirit left her body about 13 hours before she died, and it is said that a body can’t live long with out its spirit. Our body is just matter, but the spirit makes it alive.
Ok, enough of my sermon, I do hope you read the book Rog, it is very, very, good. I read 3 times and am ready for my forth.
lol
In case you didn't get this from this note, my Mom passed away in early Sept. Been a very rough time.

Monday, March 08, 2010

Again, I saw the light

A few times in my life I have seen the light, this was another one. God know not to show me the full light , it is to hard to come back.


Sometime during the late morning hours I was in my sleep, but this not being a dream as I can tell this from a dream. I have had too much experience in this type of stuff. I being asleep, looked up and saw through the window and top of a dark colored wagon like car, like a station wagon. Then I was through it(through metal and glass just my soul) and ascending into the sky upward, very fast so fast I felt my body arched backwards, but yet felt no body at all. I zoomed through darkness and during this ascent I felt bad aching pain throughout my upper torso. I heard the roaring sound a bit higher than one would think but not real high sounding in tone.( I have heard this before when being fully awake) I saw a flash of the light, so quick as to only show me its existence, and I wanted to get through to it, I wanted to be in the light, to be there for good. Leave my body behind and all my pain and suffering etc.I felt it slip away, and God's decision it was a mistake or it was what was happening to another and I was glimpsing what they were going through, they went onto the light, I returned. At first I felt warm in my upper torso, felt like I was covered in warm blood like my throat had been slit and I was covered. Then I felt very hot and awakened throwing the covers off. And my immediate thought was why I couldn't stay in the light, why I was alive. I thought that maybe I stopped breathing in my sleep and died, but then the car meant it was from someone else's event, like when Rickie died. And why did I feel such upper torso pain, perhaps it was a car accident, and I came in at the point where the car came to rest and the body of this person died. Either way, I laid for awhile thinking about it, and sad I remained here, it being God's will I remain
Just Me.......

Sunday, February 28, 2010

My Senegal Parrot

I just want to add here that Senegals are known for a game they play. I call it scratch and play. They tilt their neck for scratchers and then try to catch your finger. Mine plays it at times, and it is so funny. You have to be on gaurd for this game. Sometimes I can tell when she is going to do it from the look in her eyes, feisty look. other times I can't but I am always aware and try to be faster then her. lol
That being said the other thing is that my Seny is very teritoral of her cage and I am very careful not to put my hand into her cage unless I know it is ok. Treats are ok to come in, lol
but if I reach into her cage to pet her, I know I may get bit. Once she is out that goes away, but she is nippy now due to hormones. Try to have things ready for that beak, balsa wood, and rice cakes with no salt are fun for them to chew on instead of fingers. This time of year she can become almost un-handleable, due to hormones for Spring. If the bird is acting out and you want to keep your finges , let ithem perch for awhile and leave them alone. Mine has a perch on top of her cage and she will sit up there and preen.
My views.......

My Senegal Parrot

Re: Senegal Parrot Biting and Aggression Issues


Hi, one of the reasons that the Senegal bites when it is on the floor is because it feels vulnerable, mine won't even go onto the floor, it scares her to much. Preditors will get them if they are down low, and it is instinct for them to be up high. Widdle likes the highest spot in the room and the highest shoulder to be on.
just Me

My Senegal Parrot

Hi, I have a Seny and it can get very agressive when playing, especially games like catch the finger and so on. She can be very nippy especially now when the hormones are starting up for Spring. It is important to have something in your hand that you can put into her beak, mine loves balsa wood. Other woods are to hard for her. And she loves to chew rice cakes make with no salt. Just a couple ideas. I enjoy playing with her, and I know when I do I will have a couple holes after, but it is fun and gives her this outlet that she enjoys. Playtime can be serious for animals that are preyed on. It is also a teaching time. They learn to defend themselves. If you have ever watched cats play you see what I mean. These are wild animals no matter how you look at it. And they have those instincts still in them. To protect themselves and defend thenselves. A parrot will bite the person it is on if it is trying to get that person to flee, as it feels danger and wants to protect its loved one. If my nephew comes to close, my bird will bite me. We think it is strange behavior, but the bird thinks it is protecting you by telling you to flee the danger, like a beaver tail slap.
love my birdie,
Just Me.......

Sunday, February 21, 2010

Pernacious Anemia Society

Hi, Just wanted to let folks(the few that read this blog) know that this is there, I had no idea. The web site is really good. If you have this anemia, you will enjoy this Society.
Just Me....

Health care reform

Hi, I said it before and I want to say it again. Health care does not need Obama doing anything to it except expanding/encouraging the private sector in helping with those who don't have the money for insurance. There are free clinics all over and they are funded privately or through Gov. grants. If the Gov. gave big companies tax credits/other incentives towards contributions to these clinics and also to contributions to Hospitals who care for those who can't pay. Tim, when he had his motorcycle accident, the person who hit him had no insurance coverage at all, good ole florida for you. His whole bill was covered by the Hospital which was funding through the private sector. His bill for the Helicoptor ride alone was over 30,000.00 dollars. Thirty thousand !!. He was on life suppoert for several days, and the bill was really high, He never had to pay a cent. That is an example of what privately funded medical care is, and does. This needs to be expanded on instead of costing other who have insurance to pay higher premiums for there coverage, and making cute to Medicare etc...STOP Obama !!!
Just Me.......

visit with the surgeon

Well, not much to do. The sinus surgeon didn't have a whole lot to offer in the way of remedies. Got the anti biotic you use in your nose, not orally. It is a real hassle to use it. It is a liquid and have to mix it with some saline and spray it inot the nose. The bulb they gave me doesn't really spray well. it gushes it into my nose. ugh !!
And when it is low you have to turn it up and get the rest out with your head back. not very good. Supposed to do this 2 times a day, 30 cc per side. I am trying to do it, but my head feel full of water. Don't know about using this stuff. Need to get a bottle that sprays a mist up in my nose. In the mean time I am fighting infection, just a constant battle. The irragation thing like a water pick I try and use aften, but it is the same, much drainage after and feels like my brain is full of water. Takes forever to drain all out.
I did get the perscription to get the genetic testing done for Cystic Fibrosis, think I have the recessive gene, or one gene from mom's side of the family. At a reunion there was talk of a couple folks in the family as having it. Mom and a few of her siblings have strong symptoms, as I do also. I thought several years ago I had the symptoms of it, and did some research and feel sure that gene is in me somewhere. There was research saying you could have the one gene and show symptoms. Plus I was born with no forehead sinus's, a hallmark of Cysric Fibrosis. When I get the energy will get that test done. I am very frustrated with my sinus as this will be a constant issue for the rest of my life, made worse by the surgery. The fron of the right side where the stictches are just keeps bleeding after I blow the scab off over and over again, don't think it will wver heal. Been 5 months now.

Asphalt

I fell the other morning walking the dog, I will be so glad when my sister gets him. I am tired of walking him everyday. The yard os covered in snow, so having a fenced in yard does not help whennit is covered in snow. So noe I know why they call it Asphalt.

Mom's big adventure

Watching Mom has been a full tome job.
She was up all night the other night, part of the progression of the illness.I went to the bathroom around 2;30 am and there she was doing stuff with papers etc..I was like, Mom, you need to get to bed..she said, well I just want to get this stuff done. I threw up my hands and went to bed. Next day she was exhausted as I knew she would be, she had some neck pain and gave her her pain med, she went to sleep, and roused a bit in the evening, and laid back down, never really getting out of bed, and she slept through till morning. Which was good, she needed the rest.
Then this morning I was coming out to walk the dog. I don’t get up real early so he has to wait on me….he gets walked before I go to bed. Mom had him on the leash, and I told her, wait one minute Mom, I need to go to the bathroom and then I will walk him. I came out and she was nowhere to be found. I looked outside up and down the street, downstairs, all the rooms, and finally went and looked out the back windows and saw her in the yard of a neighbors house in lying in the snow by a tree. I called to her and she answered, I asked if she was alright and she said she could not get up. So I told her I would be there in a minute. I ran and got my boots on as where she was the snow was about a foot deep. I finally trudged to her, she had the dog , and I tried to get her up. I didn’t have the strength.Bill had come behind me and I went to help him as he had fallen in the snow already, so I went and got him to mom, he was able to get her up after I got her knees on my coat. She was shaking more out of fear then anything. Her knees and feet were numb, and we had a tough time getting her out of that yard, finally got her to the street and then I asked Bill if he could go and get the van. So he did, got her in the van and back to the house. Had to stay in the van as she was trembling and her knees were weak etc..so went ahead and finished walking the dog, and then put the dog inside and came out and Bill and I got her inside, sat her down, and got her some hot tea and food. Whew I am so tired from all that trudging in the snow, and off they went to go eat, lol…

Saturday, February 13, 2010

Hi, just popping in

Hi, I have no idea why I said Hi Mack, I don't even know a Mack. must have been a typo.
I am reading the new Diana Gabaldon book, An Echo In The Bone. She has another hit, it just came out in 2010, and so far my fellow readers are my sister,(who bought it) and 2 neices, a couple friends of my sisters. we are hooked, and knowing we have to wait another 2-3 years for the next one is torture. Diana , start right away, please !!
If you haven't read this series it is pretty good. I am about 2/3 of the way through the book of over 800 pages. I love a thick book. I can spend more time with my favorite characters.
ok, next...
I am really feeling my Psoriatic Arthritis this winter. It is really getting bad, I sure hope that the summer feels better, can't believe it. When my Rheumotologist first diagnosed me with this, I was sceptical to say the least. I figured it was all the Fibro. But I am a true believer now. It is very frustrating I can't take the ibuprofin meds for this, the anti inflamatories. I need to start on the Glucosomine, I just hate how big the pills are, they are all huge. I have a hard tome swallowing pills.
I have read more about the Preniciuos Anemoia also, and I have all the symptoms. I didn't know they had a Society. I just joined that. Amazing. I do the shots every month, but I think I need it more often, like every 2 weeks. What could it hurt, my body will just get rid of what I don't need. My red blood cells are to big from the anemia, thus causing more of the shortness of breath, and the fatigue. It would stand to reason if the red blood cells can't carry oxygen properly, you would be tired and short of beath.
My wonderful sinus surgery has turned out to be a nightmare. I just finished 4 months, yes, 4 months of anti biotics and the infection is back, after only 3-4 days. Unbelievable. I am worse now after the surgery. Where is the friggin gun, damn, this really sucks !!
I have read many message boards on this topic, chronic sinus problems, but I never see anyone with it, except Felix Unger on the Odd Couple, remember the humming, lol
well, I sympathize with anyone who has sinus problems. I got one of these sinus irragations systems, cost 100.00. You know I am desperate now, 100.00 !! it is like a water pic, but gentler. It does work but it takes a few hours for it to clear them and in that time there is a lot of drainage. ugh !!
I see the surgeon next Wed. but I am not sure she can do anything more. I first thought I would never go through that surgery again, it was pretty rough. Thank God for pain meds. But now, if it would help this situation, I guess I would do it again. I can't imagine it would be as bad. She already broke the bone and reset it in 3 places, did the stitches, scaped everything out-bad tissue. I still have bleeding from it. So I can't imagine there is much left except this one thing. I had the cat scan done and it showed Acute sinisitis, or how ever you spell that. So, what do I do now ????
I am still dealing with the Fibro, CFS,and so on.
I live with my mom and her gentleman friend, and she is losing her memory, it is pretty bad now, and he had major surgery a few months ago. He had to go to the ER like every week. I did not think I was going to survive that time. I was so exhausted, trying to keep up with everything.
At times I think my old life could not exit, being how I am now. All the dancing,almost every night, for hours on end, with out breaks. Ice skating, walking 12 miles a week. Who was this person. How could my life change so much. And I hate what I am now- so much. I want my life back , and I want my time back. Not going to happen I know, but I can still say it.
I am watching my sister's dog, she went to Vietnam for 2 weeks. And in this 2 weeks we get more snow than I have seen here in the 6-7 years I have lived here. I am telling her no more winter dog watching. She retires in a few months. I imagine she will be out here more often, but I know she wants to travel too. I loved to travel, but I can't now. I feel like I am letting her down as she wants me to go with her. I would only be a problem to her, to many health issues.
My Parrot is sceaaming for her dinner so I will close now, try to be back more often, for my own mind, as I know hardly anyone reads this. That is ok, it is an outlet for me, see ya,
my views,just me.....

Thursday, October 01, 2009

Hi Mack

I have never known anyone to have this procedure done. I am grateful that I had a very good surgeon, the surgery would have been bad no matter who did it, just glad it was done right the first time and won't have to go through it again, I hope anyway. Try searching the Yahoo groups, they have groups on just about everything.I am still getting crud out, she said it would take about 6 weeks to fully heal and I believe her, I am back on anti biotics starting today, but I think it is because I got so run down from taking care of mom and her gentleman friend, Bill. He went through the surgery very well, and will be able to come home from Morgantown in a couple weeks.Mom had her last IV putpstient treatment today, so that is done, I am wore out. Morgantown is about 3 hours from where we live. Anyway, back to the sinus thing. I had a hard time finding a good Doctor who would do it for me, this woman is so nice, she is in Winchester Va., Catherine Smith if anyone needs a good one in that area. Thanks for your comment Mack, always a pleasure to get comments back. At least I know I exist out there just a wee bit, lol...Just Me....

Wednesday, September 30, 2009

Sinus surgery

Boy, this was a rough surgery. I wouldn't have done it had I known. She scraped out all the old tissue that had repeated infections, and was chronically inflamed. She used stitches to go in and break and resew the middle bone back straight now. She opened up the right side as it had very poor drainage. this was on Sept 8 th and she also packed it to control bleeding. When that stuff came out I thought I had aliens coming out of my nose, it came out in the back of my throat 5-6 times snorting back, and as of today I am still getting big scabs and stuff out, whew, what a surgery. It feels more open, but I have a bit of infection there, that I hope will take care of itself. I was on anties for a few days after. went to her for a follow up , and she sprayed novacaine up my nostrils and used a tiny vacuum to vac out some of the packing material, but still a lot coming out after that. it has slowed down a lot but still feel like some up in there yet. As of this morning still getting scabs and such out... Whew...but then all this other stuff going on, man oh man...life is something I tell ya....
Just me................
I am 3 weeks into my recovery and much has happened, do you think I could have a nice quiet recovery here, HA !!
Last Tuesday I tucked Mom and Bill in to an ambulance and took them both to the ER. Mom has been fighting Pneumonia for 3-4 months, and enough is enough, Bill was sick , not able to eat and throwing up. He has had 3 major gut surgeries. Being in the ER from noon till 9:30 at night, running back and forth between them with the Doctors etc..They got Mom started on IV anti biotics, so she was stable and they decided to keep her for a few days. So back to Bill, went with him to do the cat scan, he had drank 2 big glasses of dye, which didn’t go out of his stomach at all. He had so much pressure in his gut, he was in bad shape. They found a blockage in the small intestine, He got a tube down his nose to pump his stomach, and I , for 2 and ½ hours putting cold clothes on his head, neck etc..he was still throwing up, but slowly the pressure eased after 500 ml had been pumped out, and he finally got his room. They were both on the same floor, Mom was 203, and he was 211. Kind of funny.
I get home and had to take care of my bird and didn’t get to bed till like 11, had to send out emails to family and talk to my sister and all..
Next day I finally got up there about 2, but on the way I got a speeding ticket, was going 36 in a 25 mile per hour zone. I was so upset. All the stress. He came back to give me the ticket and I was crying so hard I could not even talk to him, he started saying, I have to keep the roads safe, and trying to justify the ticket, and I felt like saying _- - - - - off !!!, I just folding it into my purse, and he asked me my phone number and I had to write it down as I couldn’t say it…God, I was like, oh crap I am going to look so awful at the Hospital, lol
I walked Mom over to see Bill, and I only stayed about 3 hours and then came home. I was so tired was feeling really nauseated and my head hurt so bad. My Brother Tim came and stayed with them the next day, and my sister and her son the next one. My sister went out to the other Hospital they transported Bill to in Morgan Town WV, it is a more specialized Hospital. They gave him IV nutrients as he hadn’t eaten in a week. Then did his surgery Monday at noon, it took about 5 hours, but he is all cleaned out, and he did very well, he is off the respiratory and in his own room now. Mom finished her IV treatments today too.


Jeanette

From: roger morgan [mailto:roger@morgan5010.freeserve.co.uk]

Saturday, September 05, 2009

another good author

Janet Evanovich writes very good and amusing novels, I love her books.

Books to read

If you are looking for some good books to read I have a few suggestions:
The Emerald House by Peg Kerr, and she has another one called The Wild Swans, both very good reads.
The ones that are advertised on this page are all good reads.
As I come across ones I read and like I will let you all know. Reading a good book to me is like a vacation as when I am reading my mind is free from all else, except pain of course.

Monday, August 24, 2009

No cost of living increase for Social Security this year

If that is what they are doing, then I think that the Congress and Senate should not get one either. They are the ones, and the President, who filled the Social Security account with a bunch of IOU's. Maybe they need to pay that account back !!!
Just me...

Sunday, August 09, 2009

Flu

We are just starting to get over a very nasty flu, who else has been sick. I am trying to figure if this is for 2009, or for 2010. it is so late to get a flu , it is time for the next flu shot, Mmmmmm...
Just me....

Thursday, July 23, 2009

Health Care

I think the best plan for health care is to have privately funded hospitals and clincs that are for those who have no income/money/can't afford insurance. The large companies could fund it and receive tax credits depending on the amount they contribute. Government health care will ruin the health care in this country, making the Gov. health care cheap and the other insurance companies unable to compete. You won't have a choice but to accept Gov. insurance, and it will be horrible, let me tell ya. You have to realize it will be bad, bad, bad. there are not enough Family Doctors or specialist now to go around, and this will encourage more students to become Doctors, Govenrment health care will stop many from becoming Doctors, it will be really bad. STOP GOV HEALTH CARE !!!!
Please do not support Gov health care. Anyone who can't addord health care in this country can go to Hospital today and receive care EVEN if they can't afford it. Doctors in Hospitals CAN NOT refuse you care. . of this Gov. health care goes through that may not be true. There are clinics/Hospitals today operating on grants/private funding and they do good, why not just enlarge that system. It will be better then Gov Health care, and the Gov.can offer them grants etc...they don't have to run it. They can also extend the Cobra coverage to folks who loose their jobs, making them be able to get it for 3 years, and longer if they become disabled from their jobs.There are so many other solutions other then Gov. Insurance. it is not the answer !!!
Just me and my views.....

Tuesday, July 14, 2009

Elavil:
I was offered the Elavil(sp) many times by Doctors saying it helped with pain, I don't know if it would have helped or not, all I knew is that it was one of the older anti depressants that had more side effects than the newer ones, so I never would take it. But I am on other stuff that may be just as bad. Just Me....

Friday, June 26, 2009

Oh Michael, !!!

I am very sad to hear this news. The man had much more to give us in music. He was very talented, and still very young. Who knows what more he would have produced. Very, very sad. Yes, he had his faults and they were all made public, but don't we all. Bye Michael, Bless you.
Just Me...

Oh Michael, !!!

Oh Michael, !!!

Oh Michael, !!!

Oh Michael, !!!

Oh Michael, !!!

Oh Michael, !!!

Thursday, June 18, 2009

Sinus surgery, Yahoo

I went to a new ENT and finally got it scheduled, I need it so bad. Took me 3 appt to see her as things kapt coming up, Aug.10th is may surgery date.
The ENT was very good, she looked at my scans then came in to the room. I asked her did you notice anything, and she said, oh yeah.(no forehead sinus's) I told her about the Cystic Fibrosis in the family, she mostly just listened, and was like oh ok, but no sign of investigating it. I have some of those symptoms of CF. She was fine with me wanting the surgery. And she said the one side is like smashed over on the right, which is the bad side. She will straighten out the middle bone that is crooked and then open up the right side sinus so it will drain better. So there are 2 different things she will do. She said she shouldn't have to break the bone, and she doesn't expect a lot of bleeding but there could be. I was so excited, I was like, oh my God, thanks you so much, after what I went through with that other ENT, he was a dork, really cruel when you think about it. Told me he would do the surgery on Thanksgiving, and I was like, if you are willing so am I, that came and went, then he said X-mas, and again I thought sure no problem for me, maybe his family will be away, well once that came and went I realized he was making an ass out of me, and I believe it was cause I was on Medicaid which pays them very little, I guess he thought I was crazy expecting him to do a surgery when he would get paid crap, but at the time I didn't know Medicaid paid so poorly. If he would have said something I would have made some payments to him, I just needed it done, He sent me for a swallow test, and wanted to do allergy testing, and I thought, good grief, I know I have allergies, no mystery there, I did the swallow test and it was fine, I didn't do the allergy testing, by then I realized he was a jerk,so after all that I just didn't go back, the other one out here I called and he wouldn't return my calls, so I am sure he got word I only had Medicaid.
Dr Morin is the name of the one I saw, and it should be Dr Moron !!!!
Just Me.....

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Wednesday, June 17, 2009

MY NEW BOOK IS DONE

Hi, Just finished my book and it will be copyrighted as of Today. Yahoo !!!
Look for it on readers list, or order direct from me. It is 39.99 and it has a lot of good info in it. Great for anyone renting or going to rent. I am pretty excited,
The Title is: How to Be a Successful Landlord and / or Tenant.


Just Me....

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Friday, June 12, 2009

Doggie

Our recent doggie--this was from March-06
she has since gone to heaven from bladder cancer.

Had to help take the doggie to the Vet today, She is 11 and it's time for the Glucosamine. We can give her the same as what humans take in case anyone wants to know. I thought it may have to come from the vet, but it doesn't. She will get 500mg 2 times a day and she weighs about 45 pounds.
She has Rymadil(spelling) to take until the other takes effect. Poor poocher, she has been in much pain lately.

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Colonoscopy results

What a subject, The Doctor told me to not be shy, just fart it out, I was in so much pain, but he got a laugh from me. I also have Divertiulosis, which many people get as they age, no biggy unless it goes into the Diverticulitis, which is an infection. Aren't you glad I shared this info with you.
Just Me.......

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Wednesday, June 10, 2009

Colonoscopy fun

That day:
This was about 3 years ago:

Thursday was prep day. I can not believe that in this day and age they can not come up with a friendly prep for having a colonoscopy. That is the most digesting stuff I have ever had to take. It takes like oily, salty, alka selzer. The first dose, I got down barley, and felt kinda sick etc..and did my thing for while. OK, time for dose 2, Oh my God, it took every fiber of my being not to throw that crap up. I stayed very sick for 2 hours, and at that point I know there would be no number 3, HA!!
I talked to a lady in a doctors office who had just happened to be calling me, and she said, you don't need that 3rd one and I said good, cause I can't do it anyway. Pure hell, what year is this??? We are curing cancers and all this great stuff, but do you think they could perhaps make an easier way to clear out the colon, Good Grief....
Anyway, Had it done today, went well, had some bad pain after, got some pain med, and now just some cramping here and there. It was one hell of a 2 days....
Just Me.....

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Animals

I have loved animals all my life. We always had dogs, cats, birds when I was growing up. When I left home I had 16 aquariums. I also in my childhood had a blind goose, a raccoon,a squirrel,parakeets, love birds, Quaker parrots,ducks that had 11 babies, 2 peacocks,cats,and we had 2 horses,a goat, ..that's all I can remember. Once I moved out on my own I continued with the fish, had another goose, rabbit,parakeets again,dogs,cats,and now my parrot. And I never pass up a stray...lol...
Just Me

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Sunday, June 07, 2009

NAME CHANGE

Hi, since I seem to talk about other topics besides Fibromyalgia I have changed my title of my blog to My Views. I think it describes it better.
Just Me.....

NAME CHANGE,

Friday, May 01, 2009

ebay links for balsa wood lots

http://cgi.ebay.com/ws/eBayISAPI.dll?ViewItem&item=360150568731&ssPageName=A
DME:L:LCA:US:1123

http://cgi.ebay.com/ws/eBayISAPI.dll?ViewItem&item=360150568693&ssPageName=A
DME:L:LCA:US:1123

http://cgi.ebay.com/ws/eBayISAPI.dll?ViewItem&item=360150567930&ssPageName=A
DME:L:LCA:US:1123

Thanks, Just Me.......

Saturday, April 25, 2009

Ebay listings

Hi, I have 3 listings for balsa wood on ebay if interested. Great for bird toys,cerving,crafts, etc...Thanks.
Just Me......

New advertising

Hi, I have added some advertising links to Amazon as I use them a lot and I have books listed on their site for sale. Many of the links are to items I have bought and use, and am happy with. The books advertised are books I have read and are worth reading. I am working on finding a link that will take you right to the books I have listed, Thanks, Just Me.....

Friday, April 24, 2009

Chat in a nice small group

Hi, I belong to a very small group for chatting online, here is the address:
http://uk.groups.yahoo.com/group/helpyourselfcfs-me/
There are only 3 of us active and we get to know each other that way, the other are 2 men from the UK, both very nice. Come on over and visit us there.
Just me....

Credit Cards

I have to tell you I am so glad that the gov/Obama is going to do something about these credit card companies. They have incredible interst rates, they change the due dates to try and trip you up, and the least little thing and they report to your credit report. I had a card and it was for my sister to pay off an amount run up by her daughter. She was paying the monthly fee, and doing the right thing. The company changed the due date on her, and she failed to make the payment in time.So instead of having an interst free rate, it went up to something like 24%, and they did this on purose. I know I am not the only one who was stung by them. How many companies do that, none, you have a due date the same every month. Jerks. They are doing this to so many people, and gave credit to those who should not have had it, then punish them for it. I really hope they make them have rules backed by the government, as they aren't able to rule themselves properly.And I sure hope we don't bail them out, let them fail and learn from their mistakes, this is what capitalism is about. What good is it if we bal all these companies out.It will never end.
Just Me.
Hi all, I haven't been here in awhile, a lot has happened, mostly I am still fighting all my symptoms, the worst I would say are the migraine, almost daily now. Very frustrating for me.I do have a very good Rheumy who does what he can for me, but I haven't been able to find anything that stops the migraines, gave up chocolate too !!
UGH, I drank hot Chocolate every morning and boy do I miss it. I am going to try and be on here more as there is a lot going on in the research field of Fibromyalgia and Chronic Fatugue Syndrome as well. I have many book reviews to give also for you readers. I have just finished the Thomas Covenant series, and the next book comes out in 2010, I hate to wait for it, but I must !!!
It is a very good series and really holds your interst.
Talk to you all soon,
Just Me....

Saturday, May 17, 2008

Thanks for all the comments from everyone,

I really appreciate that you all are reading my views....I take the klonopin at night to help me sleep. my doc has uped it to 1 mg a couple times a night,plus the ambien, and the promethazine(for nuasea) but helps with sleep. I recently did a sleep study, what a horrible night, they hook up so many electodes and wires to you , you feel like a robot. Went to bed at 10, at 2:30 I asked if they wanted me to take more sleep meds, they said no, they were getting a little bit. It was supposed to be a split study, 1/2 the night normal, the secod half with the machine(apnea machine), but I never got to use the machine as I didn't sleep enough. At 4:30 a,. I was gotten up, un snapped, glued etc, and sent home, Told my Doc would get the results, I felt I slept a little, but not much, I was very uncomfortable with all that stuff on me, and they said that my Doc may want me to come back to use the machine, and I said NO WAY, lol
My Neurologist wanted me to take Lyrica, well, it is basically the same as Topomax, and Neurotin, and cause the FDA said it was ok for Fibromyalgia the Docotrs are throwing it at patiens left and right. The Topomax, I could not tolerate, and I do not plan on taking this Lyrica, cause it is in the same family, just a new patent and more money for the drug conmpanies.
The shots he gave me in my neck of Lidocaine have helped that some and I wear a lidocaine patch on my neck every night, Now if anyone has tried this, you know the patch won't stay on by itself, so I wrap an elastic bandage around my neck and pin it shut, just tight enough to hold the patch in place, do not make it to tight, so that has also helped my neck. The migraines are still there, nothing new with them, same as before.And the fatigue is still there,
I made the mistake of during all this other stuff going on and taking care of Mom who has Lymphoma, and had pneuomnia and was in Hosp for 5 days recently, anyway, I let my inspection go on my car, and got the dreaded ticket the other night, and still I had my Virginia'a driver's lic, not west va., yet, so he gave me a good whopper of a ticket, that really hurt my purse strings, cause I am on a very tight budget anyway, lol But I was guilty, so what can I say, trying to get all that taking care of in the next week,
well, tired so have to log off, thanks for all the info posted here by my new frieds who come to vist, I really appreciate it. takecare
Wildblue

Thursday, May 08, 2008

had my say

OK, I have had my say on this matter, I will try not to say anymore, but just to ask folks to look away from his eyes and think, on to better things,
I finally got my Social Security after over a 3 year battle, I have an associates degree , and think of my self as being a free thinking, intelligent individual. I am not a nut case, LOL
I am still disabled, but I still have a brain to think with thank God....I do not post these things with the intent to offend anyone, just to make you think, Thanks for reading, and I will post more later on my own situation which was why I started this blog, later
Wild blue.

Thursday, December 13, 2007

Approved

After almost 3 1/2 years and great deal of help from Senator Byrd, and Congresswoman Capito, I have finally gotten approved for disability through Social Security. I still am in shock, though I don't expect to get very much a month, I feel valadated to say the least. I used Allsup as my lawyer group, and even though they did a good job, I feel like I did most of the work to get to see a different Law Judge , and I made the contact with the Senator and Congresswoman out of desperation, that due to the inquiries from the Good Senator, and Congresswoman, the previous Judge got reprimanded for making a wrong decision, Was he really, I will never know, just what I was told. I went before a new judge, very unusual, usually at the appeals council, they send you back to the same judge who denied you. Anyway, I was approved by this judge, and am very Happy. My Mom now has Lymphoma, non-hodgkins, and I am trying to help her as much as I can, it never ends....LOl
hope to write here more often, been so depressed over my situation. Be back soon
Wildblue01

Amazon Parrots

Hi, thanks for the comment, if it hadn't been for my little Senegal parrot, whom looks like a miniture Amazon, I don't think I would have made it through all this.
Thanks so very much for your kind words, and I am glad to hear from another happy bird owners. kind regards
wildblue01

Monday, January 29, 2007

Update

Hi, I am on my last appeal for Social Security. Been waiting months to get an answer. I have asked Senator Byrd, and Congresswoman Caputo to monitor it. They have made requests to the SS department, but still no word. I doubt I will get an approval. I live with my Mom and her gentleman friend, both 80 years old. I do my best to help them out, but my energy is so low. I am in Physical therapy because a doghouse in wal mart fell on top of me, and I won't get nothing for that, just more pain and suffering. Why it fell on me and not some body else, I have enough pain as it is. And then trying to get pain med from the Doctors was rediculous. They are so afraid everyone who comes in their office is an addict. Unbelievable. And Medicaid now wants one Doctor to wrote all your pain medications, so one Doc can be treating you for Migraines, and another for arthritis, but they want one to write all the pain med, even though they aren't treatring you for that illness. Very stupid policy, you think the Doctors are gonns love this one,and I have asked Congresswoman Caputo to help me with it. I was denied pain med from my Arthritis Doc, cause my primary care had written one for my Fibro. What a bunch of crap. Oh this world is such a pain, so much red tape, and I haven't the energy to deal with it.
Oh me,
Just Me

Monday, November 27, 2006

update

Hi, been a long time since I was on this blog, I stay sick so much and never feel like getting on and adding anything.My SS appeal was denied by the law Judge, and now I am on my last appeal. I have enlisted the help of my Congresswoman and senator, but will that help?, no idea. I doubt it. I was told it will go back to the same Law Judge and he will deny it again, then I have to start all over again and that will be another 2+ years, and then I will run out of time, and that will be that. I can only apply till 2009 I believe. This is so crazy. I hear they want to give welfare to the illigal imagrints(sp), and they won't help the people who live here. This country is a trip. Then I read an article in Readers Digest about how people are abusing the disability insurance and getting it when they aren't disabled, and I am thinking how in the heck did they get it in the first place, when it is the hardest thing I have ever tried to get. They must know the judge, and in that case it is the judge they need to get rid of. I have Docotrs letters, and so on and I can't get it. crazy stuff. I think the article is hurting the people who need it, makes it sound like they are just throwing it out to everyone, and the fact is folks are killing themselves cause they can't get it. What a mess. well, I am feeling not to good so I am going to go, try to write more sooner.....bye bye
just me...

Wednesday, July 12, 2006

Hearing update

Hi, sorry I am not updating more often, so tired all the time. I had my SS hearing on June 6 th, and am still waiting for an answer. I pray I will be approved. I have waited over 2 years for this hearing. I was so nervous, I wish I had done netter, but it is over, and I did waht I did.
If I get the SS disability benifits, my insurance will change to medicare, and I assume I will lose my foodstamps. Just don't know.
A few months ago I went to a new Rheumy and was diagnosed through blood tests with Psoriatic Arthritis also. My C-Reactive Protein level was 32, should have been below 3.2, and I showed a high level of inflammation. I was started on Methotrexte, but broke out from that, so had to stop. Had a colonoscopy done and have Diverticulosis(mild), and internal Hemroids(oh great), lol...I just eat lots of fiber !!
The Fibro also gives me trouble swallowing at times. Food gets stuck in my chest area, and is hard to get down. I will be having an Endascope(sp) done soon to make sure it is nothing more going on there. But think it is like IBS, but in the esophagus area. My Rheumy prescribed some other pain killers also, help some on bad flares, still on the Ultram.
Had my Momo done and it was thought to be close together lymph nodes, I redo this in a few days, follow up check. Hope that comes out ok.
I will try to update more later, see ya,
Just Me....

Thursday, February 02, 2006

Finally, The Tim story...........

Tim was my next to last boyfriend, the only one I had ever lived with, and I have dated quite a few in my healthy days. He was in a motorcycle accident while living with me; he suffered a brain injury, and was flown to Hospital. His Helmet came off and his head hit the pavement, after he bounced off a Van. The pick up truck behind him failed to stop at a red light and rear-ended him. I rushed to the Hospital, and he was having seizures, it was horrible. I held his hand and they had to keep giving him a drug that would paralysis him to try to stop any further injury. I had to put my head down, cause I felt so sick, and lightheaded from the ordeal. Finally they were ready to take him to a room, they had him on a temp respirator, hand pump type, and I was thinking please don't mess up with that. I had to wait till they got him stabilized in his room. He was on life support, stomach being pumped, etc..After forever it seemed I was allowed in. I sat holding his hand, trying to talk with him, I was so upset it was hard to talk, but when i touched him his heart rate went up, so there was some response. You know it is hard to see someone you care about with all the tubes, and the respirator etc....Well, Tim wasn't divorced yet, and his wife saw dollar signs from the accident, so she blocked my visits. I was so angry, and felt too helpless. Didn't know what to do with myself. Tim always beeped me with all 7's on my beeper, and out of his fog a few days later he beeped me. I couldn't believe it. I called and he had recovered to the point where he was able to talk on the phone, however he still thought he was at work. I tried gently to get his brain to accept that he had been in the accident. He was asking where his pants were, and he needed to get back to work. It was really sad. I had him look around where he was. I told him about the accident, and had him look at the nurse, all the tubes etc..And finally he realized what happened, had to be a real shocker. I was still blocked from seeing him, and I couldn't see him until he was well enough to say he wanted to see me. I didn't know if he would even remember me. He had a Subdural Hematoma, which is basically bleeding and swelling in the brain. It is a slow process to get it under control, he bleed from his ears, and to discover the amount of brain injury. Some of his actions were just that actions, non-thought actions. It took several days for Tim to get to the point where he was able to talk normally to the Doctors, and he had endured visits from his wife in misery. He was finally able to ask them to let me see him, at least he remembered me, and he asked that his wife not be permitted in anymore. I couldn’t get there fast enough. Some of his family had come from Minn. to see him. His mom and brother were very nice, and were on my side as far as being able to visit with him as they knew his wife, and how she had treated him. It hadn’t been a good marriage. I couldn’t get there fast enough. When I walked in to his room, he just stared at me. No expression on his face. I thought that was odd, and at the time it hurt me feeling somewhat. I expected a happy greeting. I was to find out later, that he was happy, but his affect (expressions) had been affected, and many times his face showed a lack of expression, part of the damage. I was able to meet and talk with the Doctor along with his Mom and brother. The Doctor outlined his Rehab program, and asked if we noticed any changes with him. At the time I really couldn’t put my finger on what the change I saw was. I took me a few visits to realize that Tim acted much like a child in many ways, and the Doctor confirmed my observations. I went to several of his Rehab sessions as was requested me. It was important that I be there as I would be caring for him upon his release. Tim also had the sex drive of a teen, and he had me in his Hospital bed and snuggled etc... But I was told to expect this. When I had to leave he bagged me as a child would not to leave, but the visiting hours were over and I had to go. I tried to be kind and remember his state of mind. I was told there was no way to know how far the brain would heal and what the final result would be on his personality. His Mom asked me if I were going to be there for him, as otherwise they would have to make other arrangements. I assured them I would be. I went almost every day to see him and it was an hour and a half drive. This was down in Florida. On my way home one night, it was getting to be about 10 pm, my tire blew out. I couldn’t believe I made it to the side of the road as I had been going 60 mph. I was thinking, ok, now what do I do? I went to a house, knocked and the owners were very nice, but did not speak English. I had to use motions to make them understand car trouble, can I use your phone. They were very kind and let me in to use it. I called Triple A, whom I had a membership with at the time. Thank goodness, cause otherwise I don’t know whom I would have called. They were able to put on a spare that got me home, and the next day I had to take it to a shop and have it fixed. Whew! At the time I had been going to school and working at night, so life was pretty hectic, and stressful. After a few weeks Tim was able to walk with me outside and sit on the picnic table, and walk around. It was encouraged to get him back in shape after being in bed so long. He was a weight lifter (not professional), and you could see the loss of muscle in his arms. It was strange cause every week I could see improvement in his maturity; he was growing up so to speak in front of my eyes. We were encouraged to play games where he had to add, so we played a dice game that he loved and had taught to me called Fargo. He did very well with adding, and keeping score. Eventually after much Rehab he was allowed to come home. He had homework to do, like school work to make his brain work, and I helped him get through all that when he had problems. I wasn’t to leave him alone at anytime, so I had dropped my classes for the time being to be home during the day. My night job was my own little business as a bathroom valet in a upscale night club, and I had no one to cover me. So Tim was home at night but he was in bed, and he beeped me every night to let me know all was fine. There was a phone in the bathroom also, so he called and if it wasn’t busy we could talk. He wasn’t allowed to drive at all, and I was told that if he got into a car and tried to drive to call the police. I didn’t think that would be a problem, but at a point in his maturing process he became rebellious as a teen and said he was going to drive. I had a hard time convincing him not to, but he finally relented. I believe it was the trust he had in me that got through. He also had to abstain from drinking etc for a year. The healing process would do the most in the first year, and for up to 3 years after is what the Doctor told me. So I made sure he didn’t drink. I made sure he ate really well, and we went for walks a lot. His brain chemistry was out of whack and he couldn’t sleep, was very hyper, and unable to relax. The Doctor prescribed Ambien for sleep, and I spent one night on the phone with the Doctor till early morning trying to get him to sleep. He would gradually increase his dosage, and he ended up taking 3-4 of the Ambien, a pretty large dose. I would tell the Doctor, he is still walking and talking. After that first night he had to only take a regular dose of one Ambien and it seemed to work then. He was tired and under much stress. It took a lot out of him going back to work, trying to relate to his job and friends etc.. I think he had a difficult time with being friends with the guys under him as he was a supervisor. The people at work were very tolerant as I had spoken to his boss and explained about the brain injury etc..
As time went by I noticed a lack of the ability to rationalize situations, and to control his anger less than he had before. He seemed to be un-trustful of many people. His behavior/personality had def changed to where I could notice it. At the Doctors permission we started driving, and he was able to go back to work. He worked for the county had had a great boss. His friends at work told me as time went on that he had anger problems at work, didn’t treat them as nice, and his friendships eventually shifted from old friends to new ones. It was very hard for one of his friends, he had a hard time accepting Tim’s changes, and I could totally relate. It was hard. One of the first places he wanted to go was to see the motorcycle. Needless to say it was a mess and was totaled by the insurance company. The driver that hit him had no insurance and the Hospital that treated him did so for free. The bill for the Helicopter ride alone was in the thousands due to life support and so on. He was lucky to be able to get the treatment he needed, and from such an expensive injury. Some of the others on his ward were not fortunate enough to survive as well as he did. Their brain injuries were more severe, and some in a coma, very sad.
Tim continued to improve and eventually got to a stopping point where I felt he would not go much farther. Overall he did very well, and was very lucky. He was alive and back to being healthy. Eventually he stopped the sleep medication, and regained much of his strength. Unfortunately he started to care for a young girl at work. Weather it was due to his maturity going down or otherwise I will never know. He went to visit his family, and while he was there he hardly ever called, and when he did he seemed very distant. It was hard for him to pretend due to his injury. He acted the way he felt basically. So I was aware of the warning signs. Been there, done that. Guys have a way of acting towards the old girl as opposed to the new. The old gets criticized, they become distant, they don’t do things for you anymore and so on. It probably goes with women to but since I only know the female view that is what I was seeing. Of course I had hopped it was due to the injury, and not another girl. His beeper (actually mine, as I had loaned it to him) went off one night late, and I called to find out it was a message from the girl asking if he needed a ride from the airport. He was due home that evening, and I took all of his belongings and packed them into his pick up truck. The larger items in the yard he could get later. I left him a note, and I left the house so I would not be there when he arrived. It was best at the time. It was so hard to do, caused I really loved him, but I learned from experience He wasn’t going to change, and this was his choice. I waited in a Denny’s, open all night, till 3 AM, and then went home. I cried so hard, nut I knew it was my pain and I had to go through it. It was over, and that was that. Also learned from experience, don’t try to keep hanging on, and so on, end it and get it over with when you know that is it. By this time I had bought a Consignment store business, worked at night, and continued my classes to get my Associates degree. Getting through my days was hard, but I stayed really busy. Tim had called me that next night and I told him the pain was to much and I just could not talk to him. I talked to him again a week or so later and he wanted to keep seeing each other, and I asked him if he loved me, and he said no. So I said what is the point. He ended up moving in with the girl, and I soon saw on my phone bill where he had been calling her the last month or so, several times actually. I called her to talk to her, I can’t remember the whole conversation, Tim was there also, and I told he that Tim had told me that she wasn’t that great in bed. And she immediately attacked Tim, how could you say that. I was amused that she fell for this trick. It put a cloud over there relationship that hovered and grew blacker as I know it would. Not a nice thing to do, but what can I say. I had anger; I had resentment for all I had gone through for this man, all I had given up, and then for this to happen. I could not bear to give him another chance; I could not bear the pain again. She asked me how I could have been so cruel to throw him out. In the end, a few weeks later, she threw him out also. I wanted to call her and ask her the question, but didn’t. Tim and I stayed in contact off and on as friends, even though I always cared so much more for him. He helped me move once, and we had a really good talk about everything. It was good, it was cleansing. It didn’t change what had happened, but it softened the blow so to speak.
There are so many more details involved, but this would probably get much to boring. So we went on with our lives, and on occasion met up with each other, talked and went on. I was in a trance much of the time, just wanted the pain to end, so I could move on. A Lady at the nightclub had a brother she wanted to me, he was very tall, pretty nice guy, Postal worked. So I agreed to start seeing him. And we dated etc,,, and I had told him what happened and I am not able to be very giving right now, maybe in the further, normally I am very giving person. I had suffered a great loss and needed time to heal.
So I thought he understood this, as least he said he did. We dated for quite awhile, and it was hard due to out schedules. Andre, his name, was kind of on a face track type of guy, been divorced 3 times already. So he was fun to be with but he was wanted more. Asking t go to my job at night. And I would say, so who is going to be paying my bills. He had no answer. This went on for a while; Andre had spoken about not seeing other people and that was fine with me as I as having enough problems relating to any of it at the moment.
After awhile, of my working, being busy, etc,,I called and he is put on his boat, A boat I had never been asked out on. I asked his sister is he was with someone else. She said yeah, he is with friend, Light bulb here again!!!!!!!!,,I asked id she female, Oh yes, she was. Boy I have a great track record, He was the one wanted us to see only each other. Maybe this was cursed from the get go. He wanted to move faster, and I wasn’t able to, so there ya go…After he got home from his boat ride, I totally went off on him so bad, yelling, screaming, etc..And he was shocked, lol, Needless to say, it was over.
I ended up in the Hospital with severe abdominal pain for 5 days. I had to call Andre to see if he would go by and feed my dog. That was pretty hard after all I had said. He had his sister do it for me, and I thanked him, end of our story. But I was glad to get home from the Hospital and the outcome was most likely a ruptured ovarian cyst, which took care of itself. From someone at the nightclub I caught Mono, and not the fun way. Just by being around them. I got very sick, very tired, and ended up losing my position at the nightclub. I could go back to it most likely at that one or another one, when I got better. In the meantime, my rent was due and so on. My Mom had a house over in Kissimmee, and I called and asked Tim to help me move over there. On the way home we had a really good lengthy conversation about our relationship, and we remained friends. After several weeks I had acquired a job over there but it only pain min wage, and I couldn’t exist on that, and I had problems with sleeping. My Doctor had put me on Ambien, and then out of the blue decided I shouldn’t take it anymore. So I ended up going through withdrawals that put me back in the Hospital for a night and on a medication to help me with that. I had to leave the job over there, no big lose. They had me work 9 hours, by myself in the customer service booth, with no break. And when I left she had the gall to say, “How could I do this to them” Ha…
In the end I ended up moving back up north to Virginia with my sister till I got the job with State Farm Insurance, which I lost 3 years later due to my current illness. I wrote a letter to Tim shortly after getting up here, and he wrote a short one back. I decided it was best to just let it go, and don’t look back, though sometimes it is very hard. I think about Tim allot, and wonder how he is doing. Is he remarried yet?, How are his kids? And so on. But that is basically the story of Tim, and there were many more details, but this is the highlights.
I had to get passed allot of anger and resentment towards Tim for all I had sacrificed for him, all the help I gave him, and then for him to chase around some other girl. It was very painful, but today, several years later, I can say I hope he is doing well, and I still care about him and most likely always will. Since I sated Andre, I haven't dated anyone, and it has been 7 years. When I felt that I wouldn't mind starting to date again, I fell ill and so that has prevented me from doing it. I have no energy for it.